Hodgkin Lymphoma, Non-Hodgkin Lymphoma thiab Chronic Lymphocytic Leukemia (CLL) yog txhua yam mob qog noj ntshav nrog ntau hom kev kho mob sib txawv. Kev kho mob qog nqaij hlav tuaj yeem pab kho lossis tswj koj tus kab mob thaum tseem ua rau koj lub neej zoo tshaj plaws. Nws tuaj yeem suav nrog ntau hom kev kho mob xws li kws khomob, hluav taws xob, tshuaj tiv thaiv kab mob monoclonal, kev tiv thaiv kab mob, kev kho mob, kev hloov pauv qia cell, CAR T-cell kho thiab ntau dua.
Nplooj ntawv no peb yuav muab cov ntsiab lus ntawm ntau hom kev kho mob thiab cov tswv yim los xav txog thaum kho. Txawm li cas los xij, rau cov ncauj lus kom ntxaws ntxiv ntawm CLL thiab kev kho mob lymphoma rau koj tus kheej sub-type, thov mus saib peb lub vev xaib ntawm Hom Lymphoma.
Lub hom phiaj ntawm Kev Kho Mob
Lub hom phiaj ntawm koj txoj kev kho mob lymphoma yuav nyob ntawm koj tus kheej qhov xwm txheej. Cov no tuaj yeem suav nrog:
- Koj subtype ntawm lymphoma (los yog CLL)
- Txawm hais tias koj tus kab mob tsis nyob twj ywm (loj hlob qeeb) lossis aggressive (loj hlob sai)
- Qib thiab qib ntawm koj cov qog ntshav qog ntshav
- Koj qhov kev noj qab haus huv tag nrho thiab muaj peev xwm zam kev kho mob.
Nyob ntawm koj tus kheej yam tseem ceeb, lub hom phiaj yuav kho koj los ntawm lymphoma, pab koj txav mus rau hauv kev tso cai ua tiav lossis kev tso cai ib nrab.
kho
Ua kom tiav kev zam txim
Kev zam ib nrab
Public verses Private Hospital and Specialists
Nws yog ib qho tseem ceeb kom nkag siab txog koj cov kev xaiv kho mob thaum koj ntsib nrog lymphoma lossis CLL kuaj mob. Yog tias koj muaj kev pov hwm kev noj qab haus huv ntiag tug, koj yuav tsum xav txog seb koj puas xav mus ntsib tus kws kho mob tshwj xeeb hauv cov txheej txheem ntiag tug lossis pej xeem. Thaum koj tus GP xa los ntawm kev xa mus, tham txog qhov no nrog lawv. Yog tias koj tsis muaj ntawv pov hwm kev noj qab haus huv ntiag tug, nco ntsoov qhia rau koj tus GP paub qhov no ib yam nkaus, vim qee qhov yuav xa koj mus rau qhov system ntiag tug yog tias lawv tsis paub tias koj xav tau cov txheej txheem pej xeem. Qhov no tuaj yeem ua rau raug nqi mus ntsib koj tus kws kho mob tshwj xeeb.
Koj tuaj yeem hloov koj lub siab thiab hloov rov qab mus rau tus kheej lossis pej xeem yog tias koj hloov koj lub siab.
Nyem rau kab ntawv hauv qab no kom paub txog cov txiaj ntsig thiab qhov tsis zoo ntawm kev kho mob hauv pej xeem thiab ntiag tug.
Cov txiaj ntsig ntawm Public System
- Lub kaw lus pej xeem them rau cov nqi ntawm PBS teev cov kev kho mob qog noj ntshav thiab kev tshawb nrhiav rau
lymphoma xws li PET scans thiab biopsy's. - Cov txheej txheem pej xeem kuj tseem them cov nqi ntawm qee cov tshuaj uas tsis tau teev tseg hauv PBS
zoo li dacarbazine, uas yog ib qho tshuaj khomob uas feem ntau siv hauv cov
Kev kho mob ntawm Hodgkin's lymphoma. - Qhov tsuas yog tawm ntawm hnab tshos cov nqi kho mob hauv pej xeem feem ntau yog rau cov neeg mob sab nraud
cov ntawv sau rau cov tshuaj uas koj noj hauv tsev. Qhov no feem ntau yog tsawg heev thiab yog
txawm tias tau nyiaj pab ntxiv yog tias koj muaj daim npav kho mob lossis daim npav nyiaj laus. - Ntau lub tsev kho mob pej xeem muaj ib pab neeg tshwj xeeb, kws saib xyuas neeg mob thiab cov neeg ua haujlwm noj qab haus huv, hu ua
MDT pab neeg saib xyuas koj qhov kev saib xyuas. - Ntau lub tsev kho mob loj loj tuaj yeem muab kev kho mob uas tsis muaj nyob hauv
private system. Piv txwv li qee hom kev hloov pauv, CAR T-cell therapy.
Downsides ntawm pej xeem system
- Tej zaum koj yuav tsis pom koj tus kws kho mob tshwj xeeb thaum koj teem sijhawm. Feem ntau cov tsev kho mob pej xeem yog cov chaw cob qhia lossis chaw kawm qib siab. Qhov no txhais tau tias koj tuaj yeem pom tus neeg sau npe lossis tus neeg sau npe kawm qib siab uas nyob hauv tsev kho mob, leej twg yuav rov qab qhia rau koj tus kws kho mob tshwj xeeb.
- Muaj cov kev cai nruj me ntsis ntawm kev them nyiaj los yog tawm daim ntawv lo rau cov tshuaj uas tsis muaj nyob hauv PBS. Qhov no yog nyob ntawm koj lub xeev txoj kev kho mob thiab tej zaum yuav txawv ntawm cov xeev. Yog li ntawd, qee cov tshuaj yuav tsis muaj rau koj. Koj tseem tuaj yeem tau txais tus qauv, kev pom zoo kho rau koj tus kab mob txawm li cas los xij.
- Tej zaum koj yuav tsis tuaj yeem nkag ncaj qha rau koj tus kws kho mob hematologist tab sis yuav tsum tau hu rau tus kws saib xyuas neeg mob tshwj xeeb lossis tus neeg txais tos.
Cov txiaj ntsig ntawm tus kheej system
- Koj yuav ib txwm pom tib tus kws kho mob hematologist vim tias tsis muaj tus kws kho mob kws kho mob hauv chav ntiag tug.
- Tsis muaj kev cai nyob ib ncig ntawm kev them nyiaj los yog tawm daim ntawv lo rau kev siv tshuaj. Qhov no tuaj yeem pab tau tshwj xeeb yog tias koj muaj ntau yam kab mob rov qab los lossis lymphoma subtype uas tsis muaj ntau txoj kev kho mob. Txawm li cas los xij, tuaj yeem tau txais kim heev nrog cov nuj nqis tawm hauv hnab tshos koj yuav tsum tau them.
- Qee qhov kev sim lossis kev sim ua haujlwm tuaj yeem ua tiav sai heev hauv tsev kho mob ntiag tug.
Downside ntawm private tsev kho mob
- Ntau cov nyiaj pab kev noj qab haus huv tsis them tag nrho cov nqi kuaj thiab/lossis kev kho mob. Qhov no yog nyob ntawm koj tus kheej cov nyiaj pab kev noj qab haus huv, thiab nws yog qhov zoo tshaj plaws los kuaj xyuas. Koj tseem yuav tau them tus nqi nkag txhua xyoo.
- Tsis yog txhua tus kws tshaj lij tuaj yeem sau nqi thiab tuaj yeem them tus nqi saum lub hau. Qhov no txhais tau tias muaj peev xwm tawm ntawm cov nqi hauv hnab tshos mus ntsib koj tus kws kho mob.
- Yog tias koj xav tau kev tso npe nkag thaum koj kho, cov kev saib xyuas neeg mob muaj ntau dua hauv cov tsev kho mob ntiag tug. Qhov no txhais tau hais tias tus kws saib xyuas neeg mob hauv tsev kho mob ntiag tug feem ntau muaj ntau tus neeg mob saib xyuas ntau dua li hauv tsev kho mob pej xeem.
- Koj tus kws kho mob hematologist tsis yog ib txwm nyob ntawm qhov chaw hauv tsev kho mob, lawv nyiam mus ntsib luv luv ib hnub ib zaug. Qhov no tuaj yeem txhais tau tias koj mob tsis zoo lossis xav tau kws kho mob sai, nws tsis yog koj tus kws kho mob ib txwm muaj.
Lymphoma kho nrog indolent thiab aggressive lymphoma thiab CLL
Aggressive B-cell lymphomas feem ntau teb tau zoo rau kev kho mob vim tias lawv loj hlob sai, thiab kev kho tshuaj khomob ib txwm tsom rau cov hlwb loj hlob sai. Yog li ntawd, ntau yam mob qog nqaij hlav lymphomas feem ntau kho nrog lub hom phiaj kho los yog induce ib tug tag nrho remission. Txawm li cas los xij, aggressive T-cell lymphomas feem ntau xav tau kev kho mob hnyav dua thiab tuaj yeem ua tiav, tab sis feem ntau rov qab los thiab xav tau kev kho mob ntxiv.
Feem ntau indolent lymphomas txawm li cas los xij, tsis tuaj yeem kho tau yog li lub hom phiaj ntawm kev kho mob yog ua kom muaj tus kab mob ua kom tiav lossis ib nrab kev zam txim. Ntau tus neeg uas muaj mob qog nqaij hlav hauv plab thiab CLL yuav tsis xav tau kev kho mob thaum kuaj pom thawj zaug. Yog tias koj muaj tus kab mob qog nqaij hlav tsis txaus, koj tuaj yeem mus saib & tos kom pib nrog, thiab tsuas yog pib kho mob yog tias koj cov lymphoma / CLL pib loj hlob (loj hlob), lossis koj muaj cov tsos mob. Kev nce qib tuaj yeem khaws los ntawm koj cov kev kuaj ntshav thiab tshuaj ntsuam xyuas, thiab tuaj yeem tshwm sim yam tsis muaj koj pom cov tsos mob.
Xav paub ntau ntxiv ntawm saib & tos yog txuas ntxiv hauv nplooj ntawv no.
Tham nrog koj tus kws kho mob tshwj xeeb
Nws yog ib qho tseem ceeb rau koj kom nkag siab tias yog vim li cas koj thiaj li tau txais kev kho mob, thiab yuav xav li cas. Yog tias koj tsis paub meej, nug koj tus kws kho mob seb koj puas muaj mob qog nqaij hlav lossis mob qog nqaij hlav, thiab lub hom phiaj (lossis lub hom phiaj) ntawm koj txoj kev kho mob yog dab tsi.
Tos ua ntej koj pib kho
Ua ntej koj pib kho koj yuav tsum muaj ntau qhov kev ntsuam xyuas los ua kom paub seb hom kab mob qog ntshav qog ntshav qog ntshav li cas lossis CLL koj muaj, theem twg thiab qib nws yog, thiab koj feem ntau zoo npaum li cas. Qee qhov xwm txheej, koj tus kws kho mob kuj tuaj yeem hais qhia txog kev kuaj caj ces ntawm koj cov ntshav kuaj, pob txha pob txha thiab lwm yam biopsies. Cov kev ntsuam xyuas no xyuas seb koj puas muaj kev hloov pauv caj ces uas yuav cuam tshuam qhov kev kho mob twg yuav ua haujlwm zoo tshaj rau koj.
Qee lub sij hawm nws tuaj yeem siv sij hawm ntau lub lis piam kom tau txais tag nrho koj cov txiaj ntsig, thiab lub sijhawm no tuaj yeem yog lub sijhawm muaj kev ntxhov siab thiab txhawj xeeb. Nws yog ib qho tseem ceeb heev uas yuav tau tham txog koj li cas nrog ib tus neeg koj ntseeg siab. Tej zaum koj yuav muaj ib tus neeg hauv tsev neeg lossis phooj ywg uas koj tuaj yeem tham nrog, tab sis koj tuaj yeem tham nrog koj tus kws kho mob hauv zos lossis hu rau peb ntawm peb tus kws saib xyuas mob hotline. Nyem rau ntawm qhov "Tiv tauj peb” khawm nyob hauv qab ntawm qhov screen no kom tau txais peb cov ntsiab lus.
Peb cov chaw tshaj xov xwm tseem yog ib txoj hauv kev zoo rau koj los txuas nrog lwm tus neeg nyob nrog lymphoma lossis CLL.
Sau koj cov neeg coob - Koj yuav xav tau kev txhawb nqa network
Koj yuav xav tau kev txhawb nqa ntxiv thaum koj mus txog kev kho mob. Hom kev txhawb nqa uas xav tau yog txawv ntawm ib tus neeg mus rau ib tus neeg tab sis kuj muaj xws li:
- txhawb kev xav lossis kev xav
- pab npaj zaub mov los yog ua haujlwm hauv tsev
- pab khoom
- nqa mus rau kev teem caij
- chaw zov me nyuam
- nyiaj txiag
- tus mloog zoo
Muaj kev txhawb nqa uas koj tuaj yeem nkag mus. Tham nrog koj pab neeg kho mob txog qhov koj xav tau, thiab nug lawv seb qhov kev pab cuam twg muaj nyob hauv koj cheeb tsam. Cov tsev kho mob feem ntau muaj kev nkag mus rau cov neeg ua haujlwm sib raug zoo, tus kws kho mob ua haujlwm lossis cov kev pab sab laj uas tuaj yeem pab txhawb nqa zoo.
Koj tseem tuaj yeem hu rau peb ntawm Lymphoma Australia. Peb tuaj yeem muab cov ntaub ntawv hais txog kev txhawb nqa sib txawv, nrog rau cov ntaub ntawv tshiab txog koj cov lymphoma / CLL subtype thiab kev kho mob.
Yog tias koj yog ib tus niam txiv uas muaj menyuam lossis cov hluas thiab koj lossis lawv muaj mob qog noj ntshav, CANTEEN kuj muaj kev txhawb nqa rau koj thiab koj cov menyuam.
Tab sis, peb kuj xav kom koj hu rau tsev neeg thiab cov phooj ywg kom lawv paub tias koj xav tau dab tsi, thiab koj yuav xav tau kev pab yav tom ntej. Feem ntau tib neeg xav pab, tab sis tsis paub qhov koj xav tau, yog li kev ncaj ncees txij thaum pib pab txhua tus.
Muaj ib qho app zoo uas koj tuaj yeem rub tawm hauv koj lub xov tooj, lossis nkag mus hauv Is Taws Nem hu ua "Sau kuv cov neeg ua haujlwm" uas txawm pab tswj hwm kev txhawb nqa ntxiv. Peb tau txuas cov txuas mus rau ob qho tib si CANTEEN thiab Sau kuv cov neeg ua haujlwm lub vev xaib nyob hauv qab ntawm nplooj ntawv no hauv qab ntu "Lwm yam kev pabcuam rau koj".
Xav paub ntau ntxiv txog cov lus qhia tswv yim thaum nyob nrog lymphoma thiab kev kho mob tuaj yeem pom ntawm peb cov nplooj ntawv hauv qab no.
Fertility Preservation
Kev kho mob qog nqaij hlav tuaj yeem txo koj txoj kev xeeb tub (muaj peev xwm ua rau menyuam mos). Qee qhov kev kho mob no tuaj yeem suav nrog kev kho tshuaj, qee cov tshuaj tiv thaiv kab mob monoclonal hu ua "immune checkpoint inhibitors" thiab radiotherapy rau koj lub plab mog.
Fertility teeb meem tshwm sim los ntawm cov kev kho mob no muaj xws li:
- Thaum ntxov menopause (hloov lub neej)
- Ovarian insufficiency (tsis heev menopause tab sis hloov mus rau qhov zoo lossis pes tsawg lub qe koj muaj)
- Txo cov phev suav los yog cov phev zoo.
Koj tus kws kho mob yuav tsum tham nrog koj txog dab tsi cuam tshuam rau koj txoj kev kho mob yuav muaj feem cuam tshuam rau koj txoj kev xeeb tub, thiab cov kev xaiv twg muaj los pab tiv thaiv nws. Fertility preservation tej zaum yuav ua tau nrog tej yam tshuaj los yog los ntawm khov ovum (qe), phev, zes qe menyuam los yog testicular ntaub so ntswg.
Yog tias koj tus kws kho mob tsis tau tham nrog koj, thiab koj npaj yuav muaj menyuam yav tom ntej (los yog koj tus menyuam yaus tab tom pib kho) nug lawv seb muaj kev xaiv dab tsi. Qhov kev sib tham no yuav tsum tshwm sim ua ntej koj lossis koj tus menyuam pib kho.
Yog tias koj muaj hnub nyoog qis dua 30 xyoo koj tuaj yeem tau txais kev txhawb nqa los ntawm Sony lub hauv paus uas muab kev pabcuam pub dawb pub dawb thoob tebchaws Australia. Lawv tuaj yeem tiv tauj ntawm 02 9383 6230 lossis ntawm lawv lub vev xaib https://www.sonyfoundation.org/youcanfertility.
Yog xav paub ntxiv txog kev khaws cia fertility, saib cov yees duab hauv qab no nrog tus kws tshaj lij fertility, A/Prof Kate Stern.
Koj puas yuav tau mus ntsib kws kho hniav?
Koj yuav tsis muaj peev xwm ua haujlwm kho hniav thaum kho vim muaj kev pheej hmoo kis mob thiab los ntshav. Yog tias koj feem ntau muaj teeb meem nrog koj cov hniav lossis xav tias koj yuav xav tau kev txhaws lossis lwm yam haujlwm ua tiav, nrog koj tus kws kho mob hematologist lossis tus kws kho mob oncologist txog lub sijhawm zoo tshaj plaws los ua qhov no. Yog tias muaj sijhawm, lawv yuav hais kom koj ua qhov no ua ntej pib kho.
Yog tias koj tab tom muaj kev hloov pauv ntawm cov qia cell, koj yuav raug pom zoo kom kuaj xyuas koj cov hniav ua ntej siv tshuaj kho mob siab thiab hloov qia cell.
Koj txoj kev kho mob txiav txim siab li cas?
Koj tus kws kho mob yuav tshuaj xyuas tag nrho koj qhov kev kuaj mob thiab tshuaj ntsuam xyuas ua ntej txiav txim siab txog kev kho mob zoo tshaj plaws rau koj. Ntxiv rau koj cov txiaj ntsig, koj tus kws kho mob tseem yuav xav txog cov hauv qab no, thaum txiav txim siab txog koj cov kev kho mob:
- koj txoj kev noj qab haus huv
- ib qho kev noj qab haus huv yav dhau los lossis tam sim no tsis cuam tshuam nrog koj cov qog ntshav qog ntshav lossis CLL
- yam subtype ntawm lymphoma koj muaj
- Cov lymphoma loj npaum li cas - koj theem thiab qib ntawm lymphoma lossis CLL
- txhua yam tsos mob uas koj tab tom ntsib
- koj muaj hnub nyoog thiab
- ib qho kev nyiam ntawm tus kheej koj muaj xws li kev ntseeg ntawm sab ntsuj plig thiab kab lis kev cai. Yog tias cov no tseem tsis tau tham txog qhia rau koj tus kws kho mob paub txog cov kev nyiam uas koj muaj.
Qee tus kws kho mob tuaj yeem nthuav qhia koj cov ntaub ntawv rau ib pab neeg ua haujlwm sib txawv (MDT). MDTs yog tsim los ntawm cov kws kho mob sib txawv xws li kws kho mob, kws saib xyuas neeg mob, kws kho lub cev, tus kws kho mob ua haujlwm, kws muag tshuaj, kws kho hlwb thiab lwm tus. Los ntawm kev nthuav qhia koj cov ntaub ntawv ntawm MDT lub rooj sib tham, koj tus kws kho mob tuaj yeem paub tseeb tias txhua yam ntawm koj cov kev xav tau kev noj qab haus huv tau ua tiav.
Koj txoj kev npaj khomob feem ntau hu ua "kev kho raws cai" lossis "kev kho mob". Feem ntau cov txheej txheem kev kho mob rau lymphoma lossis CLL yog npaj rau hauv lub voj voog. Qhov no txhais tau tias koj yuav muaj kev kho mob, tom qab ntawd so thiab tom qab ntawd kho ntau dua. Muaj pes tsawg lub voj voog uas koj muaj nyob rau hauv koj txoj kev kho mob yuav nyob ntawm seb koj hom subtype, kev noj qab haus huv tag nrho, koj lub cev teb li cas rau kev kho mob, thiab lub hom phiaj ntawm koj txoj kev kho mob.
Koj txoj kev npaj kho mob yuav suav nrog cov tshuaj xws li tshuaj kho mob, tshuaj tiv thaiv kab mob monoclonal lossis kev kho mob, tab sis kuj tseem suav nrog kev phais lossis kev kho hluav taws xob. Koj kuj tuaj yeem tau txais qee qhov kev kho mob txhawb nqa los pab kom koj muaj kev nyab xeeb thiab tswj txhua yam kev mob tshwm sim uas koj tau txais los ntawm kev kho mob.
Koj yuav tsis muaj txhua hom kev kho mob - nrog koj tus kws kho mob tham txog seb koj txoj kev kho mob yuav zoo li cas.
Cov lus piav qhia ntawm txhua qhov kev kho mob tau piav qhia ntxiv hauv nplooj ntawv no. Tsuas yog nyem rau ntawm lub taub hau ntawm kev kho mob koj xav kawm ntxiv txog.
Nws yog koj txoj cai kom tau txais kev xav thib ob txhua lub sijhawm thoob plaws koj txoj kev lymphoma. Tsis txhob txhawj txog kev ua phem rau koj tus kws kho mob thawj zaug, tau txais kev xav thib ob yog ib qho khoom siv, thiab qhia rau koj paub txog cov kev xaiv sib txawv uas yuav muaj, lossis tuaj yeem paub tseeb tias koj tau muab qhov zoo tshaj plaws lawm.
Yog tias koj xav tau kev xav thib ob koj tuaj yeem nug koj tus kws kho mob hematologist lossis tus kws kho mob oncologist kom muab kev xa mus rau koj. Feem ntau cov kws kho mob tshwj xeeb uas ntseeg siab rau txoj kev kho mob uas lawv tau muab rau koj, yuav tsis muaj teeb meem teeb tsa qhov no.
Txawm li cas los xij, yog tias koj tsis xav tias koj tuaj yeem tham nrog koj tus kws kho mob hematologist lossis tus kws kho mob oncologist, lossis yog tias lawv tsis kam xa daim ntawv xa mus rau koj, nrog koj tus kws kho mob tham. Koj tus kws kho mob yuav tuaj yeem xa mus rau lwm tus kws kho mob tshwj xeeb, thiab yuav tsum nkag mus rau koj cov ntaub ntawv xa mus rau tus kws kho mob tshiab.
Nrhiav kev xav thib ob tsis txhais hais tias hloov cov kws kho mob. Nws tsuas yog lwm tus kws tshaj lij saib koj keeb kwm kev kho mob, kev sim, tshuaj ntsuam xyuas thiab muab lawv cov kev xav txog kev kho mob dab tsi uas lawv yuav muab, lossis qhov kev sim ntxiv uas lawv xav tau.
Qhov kev xav thib ob ua li cas?
Qhov kev xav thib ob tuaj yeem ua tau ntau yam xws li:
- Koj tus kws kho mob hematologist tham txog koj qhov teeb meem nrog pab pawg sib tham nrog lwm tus kws tshaj lij kom tau txais lawv cov lus qhia thiab kev xav. Qhov no yuav ua tau nrog tib lub tsev kho mob lossis ib cheeb tsam hauv cheeb tsam.
- Koj tus kws kho mob hematologist lossis GP tuaj yeem xa koj cov ntaub ntawv mus rau lwm tus kws kho mob hematologist nyob txhua qhov chaw hauv Australia kom tau txais lawv cov kev xav.
- Koj cov ntaub ntawv yuav raug nthuav tawm ntawm lub rooj sib tham hauv tebchaws lossis thoob ntiaj teb ntawm cov kws tshaj lij rau kev sib tham.
Thaum koj tau txais cov ntaub ntawv los ntawm lub tswv yim thib ob koj yuav pom tias koj twb tau muab cov kev xaiv thawj koom ruam, lossis koj yuav muaj ntau txoj hauv kev los xav txog.
Leej twg tuaj yeem muab lub tswv yim thib ob?
Ib qho kev xav thib ob yuav suav nrog tsuas yog lwm tus kws kho mob haematologist lossis tus kws kho mob oncologist, tab sis kuj tseem tuaj yeem koom nrog lwm tus tswv cuab ntawm pab pawg kho mob. Qhov no yuav suav nrog cov kws kho mob hluav taws xob hluav taws xob, kws phais mob, lossis cov kws tshawb fawb thiab lwm tus tswv cuab ntawm pab pawg kho mob koom nrog hauv kev sim tshuaj.
Hloov tus kws kho mob
Koj tseem yuav nyob hauv kev saib xyuas ntawm koj tus kws kho mob hematologist.
Yog tias koj xav hloov cov kws kho mob tag nrho, koj yuav tsum tau xa mus rau lwm tus kws kho mob. Koj tus kws kho mob lossis tus kws kho mob hematologist tuaj yeem pab nrog qhov no.
Ua ntej koj pib kho koj cov qog ntshav qog ntshav lossis CLL, koj tus kws kho mob tshwj xeeb lossis tus kws saib xyuas neeg mob yuav zaum nrog koj thiab qhia koj txhua yam koj xav paub. Muaj ntau cov ntaub ntawv coj los siv rau lub sijhawm no, yog li nws yog ib lub tswv yim zoo uas yuav tsum coj tus cwj mem thiab ntawv nrog koj los sau cov ntsiab lus tseem ceeb. Lawv kuj yuav feem ntau muab cov ntaub ntawv sau rau koj xws li cov ntawv qhia tseeb lossis cov ntawv qhia uas koj tuaj yeem nqa mus tsev.
Koj tseem tuaj yeem rub tawm qee qhov kev pabcuam zoo ntawm peb Kev Txhawb Nqa rau koj lub vev xaib. Nyem qhov no mus saib seb peb muaj dab tsi.
Yog tias koj xav kawm lwm txoj hauv kev, lossis nyiam tsis hais lossis nyeem ntawv Askiv, qhia rau koj tus kws kho mob lossis tus kws saib xyuas neeg mob paub txog txoj hauv kev zoo tshaj plaws uas koj tuaj yeem kawm tau. Qee qhov chaw yuav tuaj yeem muab cov yeeb yaj kiab luv luv rau koj saib, lossis cov duab uas ua rau cov ntaub ntawv nkag siab yooj yim dua. Yog tias koj xav tau, koj tuaj yeem nug koj tus kws kho mob lossis tus kws saib xyuas neeg mob yog tias nws zoo rau koj sau cov lus sib tham hauv koj lub xov tooj kom mloog tom qab.
Yog hais tias lus Askiv tsis yog koj thawj hom lus, thiab koj xav tau cov ntaub ntawv ua hom lus koj paub ntau dua, thov kom lawv npaj ib tus neeg txhais lus los pab txhais cov ntaub ntawv rau koj. Nws yog ib lub tswv yim zoo los npaj qhov no ua ntej thaum koj tuaj yeem ua tau. Yog tias muaj sijhawm, koj tuaj yeem hu koj lub tsev kho mob lossis tsev kho mob ua ntej koj teem sijhawm. Hais kom lawv book ib tug neeg txhais lus rau koj qhov teem caij thiab thawj zaug kho mob.
Tom qab koj tau txais tag nrho cov ntaub ntawv thiab muaj cov lus teb rau koj cov lus nug, koj yuav tsum txiav txim siab seb koj puas yuav kho lossis tsis ua. Nov yog qhov koj xaiv.
Koj tus kws kho mob thiab lwm tus tswv cuab ntawm koj pab neeg kho mob tuaj yeem muab cov ntaub ntawv qhia txog qhov lawv ntseeg tias yog qhov kev xaiv zoo tshaj plaws rau koj, tab sis kev xaiv pib, lossis kev kho mob txuas ntxiv yog qhov koj yuav tsum ua.
Yog tias koj xaiv kho mob, koj yuav tsum tau kos npe rau daim ntawv tso cai, uas yog ib txoj hauv kev muab kev tso cai rau pab neeg kho mob los muab kev kho mob rau koj. Koj yuav tsum tau tso cai rau txhua hom kev kho mob sib txawv, xws li kev kho mob, kev phais, kev muab ntshav lossis hluav taws xob.
Koj tseem tuaj yeem thim qhov kev tso cai thiab xaiv tsis kho ntxiv txhua lub sijhawm yog tias koj tsis ntseeg tias nws yog qhov kev xaiv zoo tshaj rau koj. Txawm li cas los xij, koj yuav tsum tham nrog koj pab neeg saib xyuas kev noj qab haus huv txog kev pheej hmoo ntawm kev tso tseg kev kho mob, thiab kev txhawb nqa dab tsi muaj rau koj yog tias koj nres kev kho mob.
Txhawm rau pom zoo rau kev kho mob koj yuav tsum tau hais tias koj nkag siab thiab lees txais cov kev pheej hmoo thiab cov txiaj ntsig ntawm kev kho mob. Koj tsis tuaj yeem kho tsis tau tshwj tsis yog koj, koj niam koj txiv (yog tias koj muaj hnub nyoog qis dua 18 xyoos) lossis ib tus neeg saib xyuas kos npe rau daim ntawv tso cai.
Yog tias lus Askiv tsis yog koj thawj hom lus thiab koj xav kom muaj tus neeg txhais lus los piav qhia txog kev pheej hmoo thiab txiaj ntsig ntawm kev kho mob rau koj ua ntej koj kos npe tso cai, xyuas kom koj qhia rau pawg neeg saib xyuas kev noj qab haus huv paub tias koj xav tau tus neeg txhais lus. Qhov twg ua tau, nws yog ib lub tswv yim zoo kom muaj ib tus neeg hu xov tooj hauv tsev kho mob lossis chaw kho mob ua ntej koj teem caij kom qhia rau lawv paub los npaj ib tus neeg txhais lus.
Hom kev kho mob
Muaj ntau ntau hom lymphoma thiab CLL, yog li tsis txhob xav tsis thoob yog tias kev kho mob koj tau txais txawv rau lwm tus neeg uas muaj lymphoma. Txawm hais tias koj muaj tib hom lymphoma, kev hloov pauv caj ces tuaj yeem sib txawv ntawm tib neeg thiab cuam tshuam qhov kev kho mob yuav ua haujlwm zoo tshaj rau koj.
Hauv qab no peb tau muab cov ntsiab lus ntawm txhua hom kev kho mob. Txhawm rau nyeem txog ntau hom kev kho mob, nyem rau ntawm cov ncauj lus hauv qab no.
Yog tias koj muaj mob qog nqaij hlav qeeb (tsis muaj zog) lossis CLL, koj yuav tsis xav tau kev kho mob. Hloov chaw, koj tus kws kho mob tuaj yeem xaiv lub sijhawm saib thiab tos kom ze.
Lub sij hawm saib thiab tos tuaj yeem ua yuam kev me ntsis txawm tias. Nws yog qhov tseeb dua los hais "kev saib xyuas", vim tias koj tus kws kho mob yuav saib xyuas koj lub sijhawm no. Koj yuav mus ntsib kws kho mob tsis tu ncua, thiab kuaj ntshav thiab kuaj lwm yam kom paub tseeb tias koj noj qab nyob zoo, thiab koj tus kab mob tsis zoo dua. Txawm li cas los xij, yog tias koj tus kab mob hnyav dua, koj tuaj yeem pib kho.
Thaum twg yog Watch & Tos qhov kev xaiv zoo tshaj?
Saib thiab tos tej zaum yuav yog qhov kev xaiv zoo tshaj plaws rau koj yog tias koj tsis muaj ntau yam tsos mob, lossis muaj kev pheej hmoo uas yuav tsum tau kho sai.
Nws tuaj yeem nyuaj rau paub tias koj muaj hom mob qog noj ntshav, tab sis tsis ua dab tsi los tshem tawm nws. Qee tus neeg mob txawm hu lub sijhawm no "saib thiab txhawj xeeb", vim nws tuaj yeem tsis xis nyob tsis ua dab tsi los tawm tsam nws. Tab sis, saib thiab tos yog txoj hauv kev zoo los pib. Nws txhais tau hais tias cov lymphoma loj hlob qeeb dhau los ua rau koj muaj kev puas tsuaj, thiab koj lub cev tiv thaiv kab mob sib ntaus sib tua, thiab ua haujlwm zoo ua kom koj cov qog ntshav qab zib tswj tau. Yog li qhov tseeb, koj twb tau ua ntau yam los tawm tsam cov qog nqaij hlav, thiab ua haujlwm zoo heev ntawm nws. Yog tias koj lub cev tiv thaiv kab mob ua kom tswj tau, koj yuav tsis xav tau kev pab ntxiv ntawm qhov no.
Vim li cas ho tsis xav tau kev kho mob?
Cov tshuaj ntxiv uas tuaj yeem ua rau koj mob heev lossis ua rau muaj kev phiv ntev, yuav tsis pab rau lub sijhawm no. Kev tshawb fawb qhia tias tsis muaj txiaj ntsig rau kev pib kho thaum ntxov, yog tias koj muaj qog nqaij hlav qeeb lossis CLL thiab tsis muaj cov tsos mob tshwm sim. Hom mob qog noj ntshav no yuav tsis teb zoo rau cov kev kho mob tam sim no. Koj txoj kev noj qab haus huv yuav tsis zoo dua, thiab koj yuav tsis nyob ntev dua los ntawm kev pib kho ua ntej. Yog tias koj lub lymphoma lossis CLL pib loj tuaj, lossis koj pib muaj cov tsos mob ntawm koj tus kab mob, ces koj yuav pib kho.
Ntau tus neeg mob yuav xav tau kev kho mob zoo li cov uas tau teev tseg hauv nplooj ntawv no nyob rau qee lub sijhawm tab sis. Tom qab koj tau kho lawm, koj tuaj yeem rov mus saib thiab tos. Txawm li cas los xij, qee cov neeg mob uas muaj mob qog nqaij hlav hauv lub cev tsis xav tau kev kho mob.
Thaum twg yog Watch & Tos tsis yog qhov kev xaiv zoo tshaj?
Saib thiab tos tsuas yog tsim nyog yog tias koj muaj cov qog ntshav qog ntshav qis lossis CLL, thiab tsis muaj cov tsos mob tshwm sim. Koj tus kws kho mob tuaj yeem xaiv muab kev kho mob rau koj yog tias koj ntsib cov tsos mob hauv qab no:
- Cov tsos mob B - uas suav nrog kev tawm hws hmo ntuj, ua npaws tsis tu ncua & poob phaus tsis xav tau
- Teeb meem nrog koj cov ntshav suav
- Lub cev los yog cov pob txha pob txha puas vim yog lymphoma
Tus Kws Kho Mob yuav ua li cas kom kuv muaj kev nyab xeeb thaum kuv nyob ntawm Saib & Tos?
Koj tus kws kho mob yuav xav pom koj tsis tu ncua los saib xyuas koj qhov kev vam meej. Koj yuav pom lawv txhua 3-6 lub hlis, tab sis lawv yuav qhia rau koj paub yog tias nws xav tau ntau dua lossis tsawg dua qhov no.
Lawv yuav hais kom koj kuaj thiab tshuaj xyuas kom paub tseeb tias cov qog ntshav qog ntshav lossis CLL tsis loj hlob. Qee qhov kev xeem no yuav suav nrog:
- cov ntshav kuaj xyuas koj qhov kev noj qab haus huv
- kev kuaj lub cev los xyuas seb koj puas muaj cov qog nqaij hlav o lossis cov tsos mob ntawm kev loj hlob
- Cov cim tseem ceeb suav nrog koj cov ntshav siab, qhov kub thiab txias, thiab lub plawv dhia
- keeb kwm kev noj qab haus huv - koj tus kws kho mob yuav nug txog seb koj tau zoo li cas, thiab yog tias koj muaj cov tsos mob tshiab lossis mob hnyav dua
- CT lossis PET scan kom pom tias muaj dab tsi tshwm sim hauv koj lub cev.
Yog tias koj muaj kev txhawj xeeb ntawm koj qhov kev teem caij, thov hu rau koj pab neeg kho mob hauv tsev kho mob lossis chaw kho mob los tham txog cov no. Tsis txhob tos kom txog thaum lub sijhawm teem sijhawm tom ntej vim qee qhov kev txhawj xeeb yuav tsum tau tswj xyuas ntxov.
Thaum twg kuv yuav tsum hu rau kuv tus kws kho mob?
Nws yog ib qho tseem ceeb uas yuav tsum nco ntsoov tias saib kev tos yog ib txoj hauv kev los tswj cov kab mob qog nqaij hlav hauv plab thiab CLL. Txawm li cas los xij, yog tias koj pom 'saib thiab tos' txoj hauv kev nyuaj siab, thov nrog koj pab neeg kho mob tham txog nws. Lawv yuav tuaj yeem piav qhia vim li cas lawv xav tias qhov no yog qhov kev xaiv zoo tshaj plaws rau koj, thiab muab kev txhawb nqa ntxiv uas koj xav tau.
Yog tias koj muaj kev txhawj xeeb ntawm koj qhov kev teem caij, lossis muaj cov tsos mob tshiab lossis tsis zoo, thov hu rau koj pab neeg kho mob hauv tsev kho mob. Tsis txhob tos kom txog thaum lub sijhawm teem sijhawm tom ntej, vim qee qhov kev txhawj xeeb lossis cov tsos mob uas koj muaj yuav tsum tau tswj xyuas ntxov.
Yog tias koj tau txais cov tsos mob B, hu rau koj pab neeg kho mob, tsis txhob tos koj lub sijhawm teem sijhawm tom ntej.
Kev siv xov tooj cua tuaj yeem siv los kho cov qog ntshav qog ntshav, lossis txhim kho koj cov tsos mob
Kev kho hluav taws xob siv hluav taws xob x-rays (kua hluav taws xob), los tua cov qog nqaij hlav cancer. Nws tuaj yeem siv los ua kev kho mob ntawm nws tus kheej, lossis nrog lwm yam kev kho mob xws li kws khomob.
Muaj ntau qhov laj thawj uas koj tus kws kho mob tuaj yeem hais qhia kev kho hluav taws xob rau koj. Nws tuaj yeem siv los kho thiab kho qee yam lymphomas thaum ntxov, lossis txhim kho cov tsos mob. Qee cov tsos mob xws li mob lossis qaug zog tuaj yeem tshwm sim yog tias koj cov qog lymphoma loj dhau, lossis ua rau koj cov hlab ntsha lossis qaum qaum. Nyob rau hauv cov ntaub ntawv no, cov hluav taws xob yog muab rau shrink lub qog thiab txo lub siab. Txawm li cas los xij, nws tsis yog tsim los siv los kho.
Radiotherapy ua haujlwm li cas?
X-rays ua rau kev puas tsuaj rau lub cell DNA (cov khoom siv caj ces ntawm lub cell) uas ua rau nws tsis tuaj yeem ua rau lymphoma kho nws tus kheej. Qhov no ua rau lub cell tuag. Nws feem ntau yuav siv li ob peb hnub lossis txawm lub lis piam tom qab kev kho hluav taws xob pib rau lub hlwb kom tuag. Qhov kev cuam tshuam no tuaj yeem kav ntev li ob peb lub hlis, txawm li cas los xij, txawm tias lub hlis tom qab koj kho tiav, cov qog nqaij hlav qog nqaij hlav cancer tseem tuaj yeem raug rhuav tshem.
Hmoov tsis zoo, hluav taws xob tsis tuaj yeem qhia qhov txawv ntawm koj cov qog nqaij hlav qog noj ntshav thiab tsis muaj qog noj ntshav. Yog li ntawd, koj tuaj yeem tau txais cov kev mob tshwm sim uas cuam tshuam rau koj cov tawv nqaij thiab cov khoom nruab nrog cev nyob ze ntawm thaj chaw koj tab tom kho hluav taws xob. Ntau txoj kev siv hluav taws xob niaj hnub no tau dhau los ua qhov tseeb ntau dua rau lub hom phiaj ntawm kev mob qog noj ntshav ntau dua, txawm li cas los xij vim tias X-ray yuav tsum dhau los ntawm koj cov tawv nqaij thiab lwm cov ntaub so ntswg mus txog lymphoma, tag nrho cov chaw no tseem tuaj yeem cuam tshuam.
Koj tus kws kho mob hluav taws xob hluav taws xob (tus kws kho mob tshwj xeeb uas ua haujlwm nrog hluav taws xob) lossis tus kws saib xyuas neeg mob yuav tuaj yeem tham nrog koj txog cov kev mob tshwm sim uas koj tuaj yeem tau txais, nyob ntawm qhov chaw ntawm koj cov qog. Lawv kuj tseem tuaj yeem qhia koj txog qee cov khoom siv tawv nqaij zoo los tswj cov tawv nqaij uas koj tau txais.
Hom kev kho mob hluav taws xob
Muaj ntau hom kev kho hluav taws xob sib txawv, thiab qhov koj muaj yuav nyob ntawm seb qhov twg hauv koj lub cev cov qog ntshav qog ntshav, qhov chaw uas koj tab tom kho, thiab vim li cas koj thiaj li muaj kev kho hluav taws xob. Qee hom kev kho hluav taws xob tau teev tseg hauv qab no.
Intensity-modulated radiotherapy (IMRT)
IMRT tso cai rau cov koob tshuaj sib txawv ntawm kev siv xov tooj cua kom muab rau ntau qhov chaw ntawm thaj chaw uas tau kho. Nws tuaj yeem txo cov kev mob tshwm sim nrog rau cov kev mob tshwm sim lig. IMRT feem ntau yog siv los kho mob qog noj ntshav uas nyob ze rau cov kabmob tseem ceeb thiab cov qauv.
Kev koom tes hauv xov tooj cua (IFRT)
IFRT kho tag nrho cov qog nqaij hlav hauv cheeb tsam, xws li cov qog ntshav hauv koj lub caj dab lossis hauv puab tais.
Kev koom tes-node radiotherapy (INRT)
INRT kho tsuas yog cuam tshuam cov qog nqaij hlav thiab cov npoo me me nyob ib puag ncig.
Tag nrho lub cev irradiation (TBI)
TBI siv lub zog hluav taws xob kho mob siab rau koj lub cev tag nrho. Nws tuaj yeem siv los ua ib feem ntawm koj txoj kev kho mob ua ntej kev hloov pauv ntawm cov kab mob allogeneic (tus pub dawb) los rhuav tshem koj cov pob txha. Qhov no yog ua kom qhov chaw rau cov qia hlwb tshiab. Vim tias nws rhuav tshem koj cov pob txha pob txha, TBI tuaj yeem cuam tshuam koj lub cev tiv thaiv kab mob ua rau koj muaj kev pheej hmoo kis mob ntau dua.
Tag nrho daim tawv nqaij electron radiotherapy
Qhov no yog cov txheej txheem tshwj xeeb rau lymphoma ntawm daim tawv nqaij (cutaneous lymphomas). Nws siv electrons los kho koj daim tawv nqaij tag nrho.
Proton beam therapy (PBT)
PBT siv cov protons hloov X-rays. Ib tug proton siv ib tug zoo them nqi, siab zog particle los rhuav tshem cov qog nqaij hlav cancer. Lub teeb hluav taws xob los ntawm PBT tuaj yeem tsom cov hlwb ntau dua, yog li nws pab tiv thaiv cov ntaub so ntswg noj qab haus huv nyob ib puag ncig cov qog.
Dab tsi tshwm sim
Radiotherapy feem ntau yog ua nyob rau hauv cov chaw kho mob mob qog noj ntshav. Koj yuav muaj qhov kev npaj thawj zaug, qhov twg tus kws kho hluav taws xob tuaj yeem thaij duab, CT scans, thiab ua haujlwm raws nraim li cas lub tshuab hluav taws xob hluav taws xob los tsom koj cov qog nqaij hlav.
Koj tseem yuav muaj lwm tus kws tshaj lij hu ua Dosimetrist, uas npaj cov koob tshuaj hluav taws xob uas koj tau txais nrog txhua qhov kev kho mob.
Radiation tattoos
Cov kws kho hluav taws xob yuav muab koj rab koob me me uas ua rau me me xws li tattoos ntawm koj daim tawv nqaij. Qhov no yog ua kom paub tseeb tias lawv kab koj hauv lub tshuab kom raug txhua hnub kom cov hluav taws xob ib txwm ncav cuag koj cov qog ntshav thiab tsis yog lwm qhov ntawm koj lub cev. Cov tattoos me me no nyob mus ib txhis, thiab qee tus neeg saib lawv ua ib qho kev ceeb toom ntawm qhov lawv tau kov yeej. Lwm tus yuav xav ntxiv rau lawv kom lawv ua ib yam dab tsi tshwj xeeb.
Txawm li cas los xij, tsis yog txhua tus xav tau kev ceeb toom. Qee lub khw tattoo muab kev tshem tawm tattoo dawb rau cov neeg uas tau muaj lawv rau kev kho mob. Tsuas yog xov tooj los yog pop rau hauv koj lub tsev tattoo hauv zos thiab nug.
Txhua yam koj xaiv ua nrog koj cov tattoos - tsis hloov pauv kom txog thaum koj tau hais rau koj tus kws kho mob txog lub sijhawm zoo tshaj plaws los ntxiv rau, lossis tshem tawm lawv.
Kuv yuav tau txais kev kho hluav taws xob ntau npaum li cas??
Qhov ntau npaum ntawm cov hluav taws xob tau muab faib ua ntau yam kev kho mob. Feem ntau koj yuav mus rau hauv chav haujlwm hluav taws xob txhua hnub (Hnub Monday txog Friday) rau 2 txog 4 lub lis piam. Qhov no yog ua tiav vim tias nws tso cai rau koj cov hlwb noj qab haus huv lub sijhawm rov qab los ntawm kev kho mob. Nws kuj tso cai rau cov qog nqaij hlav cancer ntau dua kom raug puas tsuaj.
Txhua qhov kev sib tham feem ntau siv sijhawm 10-20 feeb. Txoj kev kho nws tus kheej tsuas yog siv 2 lossis 3 feeb xwb. Lub sijhawm so yog ua kom paub tseeb tias koj nyob hauv txoj haujlwm raug thiab cov kab hluav taws xob xoo hluav taws xob tau ua kom zoo. Lub tshuab muaj suab nrov, tab sis koj yuav tsis hnov dab tsi thaum kho.
Kuv yuav tau txais hluav taws xob npaum li cas?
Tag nrho cov koob tshuaj radiotherapy yog ntsuas hauv ib chav hu ua Grey (Gy). Grey tau muab faib ua cov kev kho mob cais hu ua 'fractions'.
Koj tag nrho Grey thiab yuav ua li cas cov feem ua haujlwm tawm yuav nyob ntawm koj qhov subtype, qhov chaw thiab qhov loj ntawm koj cov qog. Koj tus kws kho mob hluav taws xob hluav taws xob yuav tuaj yeem tham nrog koj ntxiv txog cov tshuaj uas lawv tau sau rau koj.
Kev mob tshwm sim ntawm kev kho hluav taws xob
Kev hloov pauv ntawm koj cov tawv nqaij thiab kev nkees heev tsis tuaj yeem txhim kho nrog kev so (kev qaug zog) yog qhov tshwm sim tshwm sim rau ntau tus neeg uas muaj kev kho hluav taws xob. Lwm yam kev mob tshwm sim tuaj yeem nyob ntawm qhov chaw nyob hauv koj lub cev cov hluav taws xob tsom.
Kev mob tshwm sim ntawm kev kho hluav taws xob feem ntau cuam tshuam nrog cov tawv nqaij tawm tsam ntawm koj lub cev uas muaj kev kho mob. Kev qaug zog kuj yog ib qho kev mob tshwm sim rau leej twg muaj kev kho mob. Tab sis muaj lwm yam kev mob tshwm sim uas yog ore nyob ntawm qhov chaw kho mob - lossis qhov twg ntawm koj lub cev muaj cov lymphoma raug kho.
Cov tawv nqaij tiv thaiv
Cov tshuaj tiv thaiv ntawm daim tawv nqaij yuav zoo li lub hnub kub hnyiab thiab, txawm hais tias nws tuaj yeem ua rau qee qhov hlwv thiab ib qho "tan line" mus tas li nws tsis yog qhov kub hnyiab. Nws yog ib hom kab mob dermatitis lossis inflammatory ntawm daim tawv nqaij cov tshuaj tiv thaiv uas tshwm sim tsuas yog ntawm daim tawv nqaij saum toj no qhov chaw kho.
Cov tawv nqaij tej zaum kuj tuaj yeem ua rau mob hnyav dua li ntawm 2 lub lis piam tom qab kev kho mob tas, tab sis yuav tsum tau txhim kho hauv ib hlis tom qab kho tiav.
Koj pab pawg hluav taws xob tuaj yeem tham nrog koj txog txoj hauv kev zoo tshaj plaws los tswj cov kev xav ntawm daim tawv nqaij thiab cov khoom xws li moisturizers lossis cream yuav ua haujlwm zoo tshaj rau koj. Txawm li cas los xij, qee yam uas yuav pab tau suav nrog:
- Hnav khaub ncaws xoob
- Siv cov ntaub pua tsev zoo
- Cov hmoov ntxhua me me hauv koj lub tshuab ntxhua khaub ncaws - qee qhov yog tsim rau cov tawv nqaij rhiab heev
- Ntxuav koj cov tawv nqaij maj mam nrog cov tshuaj "dawb xab npum", los yog xab npum me me
- Noj luv, da dej sov los yog da dej
- Tsis txhob haus cawv rau ntawm daim tawv nqaij
- Tsis txhob rub daim tawv nqaij
- Khaws koj cov tawv nqaij kom txias
- Npog thaum sab nraud, thiab tsis txhob tshav ntuj ntawm koj qhov chaw kho mob yog qhov ua tau. Hnav lub kaus mom thiab tshuaj pleev thaiv hnub thaum tawm nraum zoov
- Tsis txhob ua luam dej
nkees nkees
Fatigue yog ib qho kev xav ntawm kev nkees heev txawm tias tom qab so. Qhov no tuaj yeem tshwm sim los ntawm kev ntxhov siab ntxiv koj lub cev nyob rau hauv lub sijhawm kho, thiab sim ua kom cov hlwb tshiab, kev kho mob txhua hnub, thiab kev ntxhov siab ntawm kev nyob nrog lymphoma thiab nws cov kev kho mob.
Kev qaug zog tuaj yeem pib sai sai tom qab kev kho hluav taws xob pib, thiab kav ntev li ob peb lub lis piam tom qab ua tiav.
Qee yam uas tuaj yeem pab koj tswj koj qhov qaug zog tuaj yeem suav nrog:
- Npaj ua ntej yog tias muaj sijhawm, lossis hais kom cov neeg koj hlub npaj zaub mov ua ntej koj tsuas yog xav tau kom sov. Cov zaub mov muaj protein ntau xws li nqaij liab, qe thiab zaub ntsuab tuaj yeem pab koj lub cev tsim cov hlwb tshiab.
- Kev tawm dag zog lub teeb pom tau tias txhim kho qib zog thiab qaug zog, yog li ua kom nquag plias tuaj yeem pab tsis muaj zog thiab tsaug zog.
- Mloog koj lub cev thiab so thaum koj xav tau
- Taug qab koj qhov qaug zog, yog tias koj paub tias nws feem ntau zuj zus nyob rau qee lub sijhawm ntawm hnub, koj tuaj yeem npaj cov haujlwm nyob ib puag ncig ntawd
- Ua ib qho kev pw tsaug zog ib txwm - txawm tias koj nkees, sim mus pw thiab sawv ntawm koj lub sijhawm li ib txwm. Cov kev kho mob ntxiv tuaj yeem pab suav nrog kev kho kom so, yoga, kev xav, thiab kev nco qab.
- Tsis txhob ntxhov siab thaum ua tau.
Qee zaum, qaug zog tuaj yeem tshwm sim los ntawm lwm yam xws li cov ntshav qis. Yog tias qhov no tshwm sim, koj tuaj yeem muab cov ntshav los txhim kho koj cov ntshav.
Nws yog ib qho tseem ceeb kom qhia rau koj tus kws kho mob paub yog tias koj tawm tsam nrog kev qaug zog.
Lwm cov kev mob tshwm sim tuaj yeem suav nrog:
- Cov plaub hau poob - tab sis tsuas yog rau thaj chaw raug kho
- xeev siab
- Mob plab lossis mob plab
- Inflamation - rau koj lub cev nyob ze ntawm qhov chaw kho
Cov vis dis aus nyob hauv qab ntawm ntu hom kev kho mob no muab cov ntaub ntawv ntau ntxiv txog dab tsi yuav xav tau nrog kev kho hluav taws xob nrog rau kev mob tshwm sim.
Tshuaj kho mob (chemo) tau siv los kho mob qog noj ntshav tau ntau xyoo. Muaj ntau hom tshuaj chemo thiab koj yuav muaj ntau dua ib hom tshuaj kho mob los kho koj CLL lossis lymphoma. Txhua yam kev mob tshwm sim uas koj tau txais yuav nyob ntawm seb cov tshuaj khomob twg koj muaj.
chemo ua haujlwm li cas?
Tshuaj kho mob ua haujlwm los ntawm kev tawm tsam ncaj qha rau cov hlwb uas loj hlob sai. Qhov no yog vim li cas nws feem ntau ua haujlwm zoo rau kev txhoj puab heev - lossis loj hlob lymphomas. Txawm li cas los xij, nws tseem yog qhov kev txiav txim siab no tawm tsam cov cell loj hlob sai uas tuaj yeem ua rau tsis muaj kev phiv tshwm sim hauv qee tus neeg, xws li plaub hau poob, qhov ncauj mob thiab mob (mucositis), xeev siab thiab raws plab.
Vim tias cov tshuaj chemo tuaj yeem cuam tshuam rau txhua lub cell loj hlob sai, thiab tsis tuaj yeem qhia qhov sib txawv ntawm cov hlwb noj qab haus huv thiab cov qog nqaij hlav qog noj ntshav - nws yog hu ua "kev kho mob", txhais tau tias txhua lub cev ntawm koj lub cev tuaj yeem cuam tshuam los ntawm kev mob tshwm sim los ntawm chemo.
Cov kws khomob sib txawv tawm tsam cov lymphoma ntawm ntau theem ntawm kev loj hlob. Qee cov tshuaj tua kab mob qog noj ntshav uas tau so, qee qhov tawm tsam cov uas nyuam qhuav loj hlob tuaj, thiab qee qhov tua cov qog ntshav qog ntshav uas loj heev. Los ntawm muab cov tshuaj chemo uas ua haujlwm ntawm cov hlwb hauv ntau theem, muaj peev xwm tua cov qog ntshav qog ntshav ntau dua thiab tau txais txiaj ntsig zoo dua. Los ntawm kev siv tshuaj khomob sib txawv, peb tuaj yeem txo cov koob tshuaj me me uas tseem yuav txhais tau tias muaj kev phiv tsawg dua los ntawm txhua yam tshuaj, thaum tseem tau txais txiaj ntsig zoo tshaj plaws.
chemo muab li cas?
Chemo tuaj yeem muab ntau txoj hauv kev, nyob ntawm koj tus kheej subtype thiab qhov xwm txheej. Qee txoj hauv kev chemo tuaj yeem muab tau suav nrog:
- Intravenously (IV) - los ntawm cov kua hauv koj cov leeg (feem ntau).
- Cov ntsiav tshuaj ntawm qhov ncauj, tshuaj ntsiav lossis kua - noj los ntawm qhov ncauj.
- Intrathecal - muab rau koj los ntawm tus kws kho mob nrog rab koob rau hauv koj lub nraub qaum, thiab rau hauv cov kua dej uas nyob ib puag ncig koj tus txha caj qaum thiab lub hlwb.
- Subcutaneous - ib koob txhaj tshuaj rau hauv cov ntaub so ntswg rog hauv koj daim tawv nqaij. Nws feem ntau muab rau hauv koj lub plab (qhov chaw hauv plab) tab sis tuaj yeem muab rau hauv koj sab caj npab lossis ceg.
- Tshuaj pleev ib ce - qee cov qog nqaij hlav ntawm daim tawv nqaij (cutaneous) yuav raug kho nrog tshuaj loog.
Lub voj voog ntawm kev siv tshuaj khomob yog dab tsi?
Kev kho tshuaj khomob yog muab rau hauv "kev voj voog", uas txhais tau hais tias koj yuav muaj koj cov tshuaj chemo tshaj li ib lossis ntau hnub, tom qab ntawd tau so rau ob lossis peb lub lis piam ua ntej muaj chemo ntxiv. Qhov no yog ua tiav vim tias koj cov hlwb noj qab haus huv xav tau lub sijhawm rov zoo ua ntej koj tau txais kev kho mob ntxiv.
Nco ntsoov saum toj no peb tau hais tias chemo ua haujlwm los ntawm kev tawm tsam cov cell loj hlob sai. Qee qhov ntawm koj cov hlwb loj hlob sai tuaj yeem suav nrog koj cov qe ntshav noj qab haus huv. Cov no tuaj yeem ua rau qis thaum koj muaj chemo.
Qhov xwm zoo yog tias koj cov hlwb noj qab haus huv rov qab sai dua koj cov qog ntshav qog ntshav. Yog li tom qab txhua qhov kev hloov pauv - lossis lub voj voog ntawm kev kho mob, koj yuav tau so thaum koj lub cev ua haujlwm los tsim cov hlwb tshiab. Thaum cov hlwb no rov qab mus rau qib kev nyab xeeb, koj yuav muaj lub voj voog tom ntej - qhov no feem ntau yog ob lossis peb lub lis piam nyob ntawm seb koj muaj li cas, yog tias koj lub hlwb siv sijhawm ntev dua, koj tus kws kho mob yuav hais kom so ntev dua. Lawv kuj tseem yuav muab qee cov kev kho mob txhawb nqa los pab koj cov hlwb zoo rov qab los. Xav paub ntau ntxiv txog kev txhawb nqa kev kho mob tuaj yeem pom ntxiv hauv nplooj ntawv no.
Xav paub ntau ntxiv txog cov txheej txheem kho mob thiab lawv cov kev mob tshwm sim
Nyob ntawm koj lub subtype ntawm lymphoma koj yuav tau plaub, rau lossis ntau lub voj voog. Thaum tag nrho cov voj voog no muab tso ua ke nws hu ua koj txoj cai lossis kev tswj hwm. Yog tias koj paub lub npe ntawm koj tus kws khomob raws tu qauv, koj tuaj yeem ua tau nrhiav cov ntaub ntawv ntxiv, suav nrog cov kev mob tshwm sim uas xav tau ntawm nws ntawm no.
Yog xav paub ntxiv txog kev siv tshuaj khomob, nyem rau ntawm lub pob nyob hauv qab ntawm cov kev kho mob ntu kom saib cov yeeb yaj kiab luv luv.
Monoclonal antibodies (MABs) yog thawj zaug siv los kho lymphoma thaum xyoo 1990's lig. Txawm li cas los xij, nyob rau xyoo tas los no, ntau cov tshuaj tiv thaiv kab mob monoclonal tau tsim. Lawv tuaj yeem ua haujlwm ncaj qha rau koj cov qog ntshav qog ntshav lossis nyiam koj lub cev tiv thaiv kab mob rau koj cov qog ntshav qog ntshav los tua thiab tua nws. MABs yooj yim los txheeb xyuas vim tias thaum koj siv lawv lub npe (tsis yog lawv lub npe), lawv ib txwm xaus nrog peb tsab ntawv "mab". Piv txwv ntawm MABs feem ntau siv los kho cov qog ntshav qog ntshav muaj xws li rituximab, lusmab, pembrolizumab.
Qee cov MABs, xws li rituximab thiab obinutuzumab tau siv nrog rau sab chemo los kho koj cov qog ntshav qog ntshav. Tab sis lawv kuj feem ntau siv los ua ib qho “kev tu” kev kho mob. Qhov no yog thaum koj tau ua tiav koj qhov kev kho mob thawj zaug thiab muaj lus teb zoo. Tom qab ntawd koj tseem muaj MAB tsuas yog li ob xyoos xwb. Qhov no yuav pab ua kom koj cov qog ntshav qog ntshav qab zib tau ntev dua.
Monoclonal antibodies ua haujlwm li cas?
Monoclonal antibodies tsuas yog ua haujlwm tawm tsam lymphoma yog tias lawv muaj cov protein tshwj xeeb lossis cov tshuaj tiv thaiv kab mob rau lawv. Tsis yog txhua lub qog ntshav qog ntshav yuav muaj cov cim no, thiab qee qhov yuav muaj ib qho cim xwb, thaum lwm tus yuav muaj ntau dua. Piv txwv ntawm cov no suav nrog CD20, CD30 thiab PD-L1 lossis PD-L2. Monoclonal antibodies tuaj yeem tua koj cov qog nqaij hlav hauv ntau txoj kev:
Direct
Kev tiv thaiv kab mob
Kev tiv thaiv kab mob MABs ua haujlwm los ntawm kev txuas lawv tus kheej rau koj cov qog ntshav qog ntshav thiab nyiam lwm lub hlwb ntawm koj lub cev tiv thaiv kab mob rau cov qog ntshav. Cov kab mob tiv thaiv kab mob no tuaj yeem tuaj yeem tua cov lymphoma ncaj qha.
Piv txwv ntawm kev tiv thaiv ncaj qha thiab tiv thaiv kab mob MABs siv los kho lymphoma lossis CLL suav nrog rituximab thiab obinutuzumab.
Immune-checkpoint inhibitors
Immune checkpoint inhibitors yog hom tshiab ntawm monoclonal antibody uas ncaj qha rau koj lub cev tiv thaiv kab mob.
Qee cov qog nqaij hlav, suav nrog qee cov qog nqaij hlav qog nqaij hlav kom loj hlob "cov tshuaj tiv thaiv kab mob" ntawm lawv. Cov tshuaj tiv thaiv kab mob yog ib txoj hauv kev rau koj lub hlwb kom paub lawv tus kheej tias yog "tus kheej ntawm tes". Qhov ntawd txhais tau hais tias koj lub cev tiv thaiv kab mob pom lub cev tiv thaiv kab mob, thiab xav tias lymphoma yog lub cell noj qab haus huv. Yog li koj lub cev tiv thaiv kab mob tsis tua cov lymphoma, es tsis txhob cia nws loj hlob.
Piv txwv ntawm cov tshuaj tiv thaiv kab mob tiv thaiv kab mob siv los kho lymphoma suav nrog pembrolizumab thiab nivolumab.
Cov tshuaj tiv thaiv kab mob tiv thaiv kab mob txuas mus rau qhov chaw kuaj kab mob ntawm koj lub lymphoma cell kom koj lub cev tsis tuaj yeem pom qhov chaw kuaj xyuas. Qhov no tom qab ntawd tso cai rau koj lub cev tiv thaiv kab mob kom paub txog lymphoma ua mob qog noj ntshav, thiab pib tawm tsam nws.
Raws li kev ua MAB, Immune Checkpoint Inhibitors kuj yog hom kev tiv thaiv kab mob, vim lawv ua haujlwm los ntawm kev tsom koj lub cev tiv thaiv kab mob.
Qee qhov tsis tshua muaj tshwm sim los ntawm cov tshuaj tiv thaiv kab mob hauv lub cev tuaj yeem ua rau muaj kev hloov pauv mus tas li xws li teeb meem thyroid, ntshav qab zib hom 2 lossis teeb meem fertility. Cov no yuav tsum tau tswj hwm nrog lwm cov tshuaj lossis nrog lwm tus kws kho mob tshwj xeeb. Tham nrog koj tus kws kho mob txog qhov kev pheej hmoo ntawm kev kho mob.
Cytokine inhibitors
Raws li kev ua MAB, Cytokine Inhibitors kuj yog hom kev tiv thaiv kab mob, vim lawv ua haujlwm los ntawm kev tsom koj lub cev tiv thaiv kab mob.
Qee qhov tsis tshua muaj tshwm sim los ntawm cytokine inhibitors tuaj yeem ua rau muaj kev hloov pauv mus tas li xws li teeb meem thyroid, ntshav qab zib hom 2 lossis teeb meem fertility. Cov no yuav tsum tau tswj hwm nrog lwm cov tshuaj lossis nrog lwm tus kws kho mob tshwj xeeb. Tham nrog koj tus kws kho mob txog qhov kev pheej hmoo ntawm kev kho mob.
Bispecific monoclonal tshuaj tiv thaiv
Conjugated
Xav paub ntau ntxiv
Cov teebmeem ntawm Monoclonal antibodies (MABs)
- Ua npaws, ua daus no los yog tshee (rigors)
- Mob ib ce thiab mob ib ce
- Zawv plab
- Rho tawm ntawm koj daim tawv nqaij
- xeev siab thiab ntuav
- Tsis tshua muaj ntshav siab (hypotension)
- Cov tsos mob ua npaws
Immunotherapy yog ib lo lus siv rau kev kho mob uas tsom koj lub cev tiv thaiv kab mob es tsis yog koj li lymphoma. Lawv ua qhov no los hloov qee yam ntawm txoj kev koj tus kheej lub cev tiv thaiv kab mob pom thiab tawm tsam koj cov qog ntshav qog ntshav.
Ntau hom kev kho mob tuaj yeem suav hais tias yog immunotherapy. Qee qhov MABs hu ua Immune Checkpoint Inhibitors lossis Cytokine Inhibitors yog ib hom kev tiv thaiv kab mob. Tab sis lwm yam kev kho mob xws li qee qhov kev kho mob lossis CAR T-cell therapy kuj yog hom kev tiv thaiv kab mob.
Qee cov qog ntshav qog ntshav loj hlob nrog cov cim tshwj xeeb ntawm cov cell uas koj cov hlwb noj qab haus huv tsis muaj. Cov phiaj xwm kev kho mob yog cov tshuaj uas tsuas paub txog cov cim tshwj xeeb, yog li nws tuaj yeem qhia qhov txawv ntawm lymphoma thiab cov hlwb noj qab haus huv.
Cov phiaj xwm kev kho mob tom qab ntawd txuas mus rau qhov cim ntawm lub lymphoma cell thiab txwv tsis pub nws tsis tau txais cov cim qhia kom loj hlob thiab kis tau. Qhov no ua rau lymphoma tsis tuaj yeem tau txais cov as-ham thiab lub zog nws xav tau kom loj hlob, ua rau lymphoma cell tuag.
Los ntawm kev txuas tsuas yog cov cim ntawm cov qog ntshav qog ntshav, kev kho mob tuaj yeem zam kev ua rau koj cov hlwb noj qab haus huv. Qhov no ua rau muaj kev phiv tsawg dua li kev kho mob zoo li chemo, uas tsis tuaj yeem qhia qhov txawv ntawm lymphoma thiab cov hlwb noj qab haus huv.
Kev mob tshwm sim ntawm kev kho mob
Koj tseem tuaj yeem tau txais cov kev mob tshwm sim los ntawm cov phiaj xwm kho mob txawm li cas los xij. Qee qhov tuaj yeem zoo ib yam li cov kev mob tshwm sim rau lwm yam kev kho mob qog noj ntshav, tab sis tau tswj hwm qhov sib txawv. Nco ntsoov tias koj tham nrog koj tus kws kho mob lossis tus kws saib xyuas neeg mob tshwj xeeb txog yam kev mob tshwm sim los saib xyuas, thiab koj yuav tsum ua li cas yog tias koj tau txais lawv.
Cov kev mob tshwm sim feem ntau ntawm kev kho mob tuaj yeem suav nrog:
- raws plab
- lub cev mob thiab mob
- los ntshav thiab bruising
- kab mob
- nkees
Ntau hom kev kho mob, qee cov tshuaj khomob thiab kev tiv thaiv kab mob tiv thaiv kab mob yog siv los ntawm qhov ncauj ua ntsiav tshuaj lossis tshuaj ntsiav. Kev kho mob qog noj ntshav los ntawm qhov ncauj feem ntau hu ua "kev kho qhov ncauj". Nws yog ib qho tseem ceeb kom paub yog tias koj qhov kev kho qhov ncauj yog kev kho mob los yog kev kho mob. Yog koj tsis paub meej nug koj tus kws kho mob lossis tus kws saib xyuas neeg mob.
Cov kev mob tshwm sim uas koj yuav tsum tau saib xyuas, thiab koj tswj lawv li cas yuav txawv nyob ntawm seb hom kev kho qhov ncauj twg koj tau noj.
Qee cov kev kho qhov ncauj uas siv los kho cov qog ntshav qog ntshav tau teev tseg hauv qab no.
Kev kho qhov ncauj - Chemotherapy
Lub npe tshuaj | Feem ntau cov kev mob tshwm sim |
Chlorambucil | Kev ntshav qis yog suav nrog Tus mob Ntshai & ntuav Zawv plab |
Cyclophosphamide | Kev ntshav qis yog suav nrog Tus mob Ntshai & ntuav Poob tsis qab los noj mov |
Etoposide | Ntshai & ntuav Poob tsis qab los noj mov Zawv plab nkees nkees |
Kev kho qhov ncauj - Targeted thiab Immunotherapy
Lub npe tshuaj | Targeted los yog immunotherapy | Subtypes ntawm Lymphoma / CLL nws tau siv | Cov teebmeem loj |
Acalabrutinib | Targeted (BTK Inhibitor) | Mob taub hau Zawv plab Qhov hnyav nce | |
Zanubrutinib | Targeted (BTK Inhibitor) | Kev ntshav qis yog suav nrog Qhib Zawv plab | |
Ibrutinib | Targeted (BTK Inhibitor) |
| Lub plawv muaj teeb meem atherosclerosis Teeb meem ntshav qab zib Mob ntshav siab |
Idelalisib | Targeted (Pl3K Inhibitor) | Zawv plab Mob qhov teeb meem Mob ntsws muaj kab mob | |
Lenalidomide hmoov | immunotherapy | Siv nyob rau hauv ib co NHLs | Cov tawv nqaij ua pob liab liab xeev siab Zawv plab |
Venetoclax | Targeted (BCL2 Inhibitor) | xeev siab Zawv plab Teeb meem ntshav qab zib Tus mob | |
Vorinostat | Targeted (HDAC Inhibitor) | Poob tsis qab los noj mov qhov ncauj qhuav Cov plaub hau tsis Cov kab mob | |
Stem cell yog dab tsi?
Yuav kom nkag siab txog cov qia cell lossis cov pob txha pob txha hloov, koj yuav tsum nkag siab tias qia cell yog dab tsi.
Stem cells yog cov qe ntshav tsis paub qab hau uas loj hlob hauv koj cov pob txha. Lawv tshwj xeeb vim tias lawv muaj peev xwm los txhim kho qhov twg cov ntshav cell koj lub cev xav tau, suav nrog:
- Cov qe ntshav liab - uas nqa oxygen nyob ib puag ncig koj lub cev
- ib qho ntawm koj cov qe ntshav dawb suav nrog koj cov lymphocytes thiab neutrophils uas tiv thaiv koj ntawm kab mob thiab kab mob
- platelets - uas pab koj cov ntshav txhaws yog tias koj ua pob lossis ua rau koj tus kheej raug mob, yog li koj tsis txhob los ntshav lossis nqaij tawv ntau dhau.
Peb lub cev tsim ntau txhiab tus kab mob tshiab txhua hnub vim tias peb cov qe ntshav tsis tau ua kom nyob mus ib txhis. Yog li txhua hnub, peb lub cev ua haujlwm hnyav kom peb cov qe ntshav ntawm tus lej raug.
Lub stem cell los yog pob txha hloov pauv yog dab tsi?
Kev hloov cov qia cell yog txheej txheem uas yuav siv tau los kho koj cov qog ntshav qog ntshav, lossis ua kom koj nyob hauv kev zam txim ntev dua yog tias muaj feem ntau koj cov qog ntshav qab zib yuav rov qab los (rov qab los). Koj tus kws kho mob kuj tseem tuaj yeem pom zoo kom hloov cov qia cell rau koj thaum koj cov qog ntshav qab zib.
Kev hloov ntawm qia cell yog ib txoj kev nyuaj thiab cuam tshuam uas tshwm sim hauv theem. Cov neeg mob uas tau hloov cov qia cell yog thawj zaug npaj nrog kev kho mob ib leeg lossis ua ke nrog kev kho hluav taws xob. Kev kho mob chemotherapy siv nyob rau hauv qia cell transplants yog muab nyob rau hauv ntau dua koob tshuaj tshaj li niaj zaus. Qhov kev xaiv ntawm chemotherapy muab rau theem no yog nyob ntawm hom thiab lub hom phiaj ntawm kev hloov pauv. Muaj peb qhov chaw uas qia hlwb rau kev hloov pauv tuaj yeem sau los ntawm:
Cov pob txha hlwb: qia hlwb raug sau ncaj qha los ntawm cov pob txha pob txha thiab hu ua a 'Bone Marrow Transplant' (BMT).
Peripheral qia hlwb: qia hlwb raug sau los ntawm cov ntshav peripheral thiab qhov no yog hu ua a 'peripheral blood stem cell transplant' (PBSCT). Qhov no yog qhov feem ntau ntawm cov qia hlwb siv rau kev hloov pauv.
Ntshav qab zib: Cov qia hlwb raug sau los ntawm txoj hlab ntaws tom qab yug me nyuam. Qhov no hu ua a 'kab ntshav hloov', qhov twg cov no tsis tshua muaj ntau dua li peripheral lossis pob txha pob txha hloov.
Xav paub ntau ntxiv txog Stem Cell Transplants
Yog xav paub ntxiv txog kev hloov cov qia cell saib peb cov nplooj ntawv hauv qab no.
Stem cell hloov – ib tug txheej txheem cej luam
Autologous qia cell hloov - siv koj tus kheej qia hlwb
Allogeneic qia cell hloov - siv lwm tus (tus neeg pub dawb) cov qia hlwb
CAR T-cell therapy yog ib qho kev kho tshiab uas siv thiab txhim kho koj lub cev tiv thaiv kab mob los tua koj cov qog ntshav qog ntshav. Nws tsuas yog muaj rau cov neeg uas muaj qee hom qog ntshav qog ntshav xws li:
- Primary Mediastinal B-Cell Lymphoma (PMBCL)
- Relapsed lossis refractory Diffuse Loj B-Cell Lymphoma (DLBCL)
- Hloov pauv Follicular Lymphoma (FL)
- B-cell Acute Lymphoblastic Lymphoma (B-ALL) rau cov neeg muaj hnub nyoog 25 xyoos lossis qis dua
Txhua tus neeg hauv tebchaws Australia uas muaj tus kab mob qog nqaij hlav tsim nyog, thiab ua tau raws li cov qauv tsim nyog tuaj yeem tau txais CAR T-cell therapy. Txawm li cas los xij rau qee tus neeg, tej zaum koj yuav tau mus ncig thiab nyob hauv nroog loj lossis mus rau lwm lub xeev kom nkag mus rau qhov kev kho mob no. Cov nqi ntawm qhov no yog them los ntawm cov nyiaj kho mob, yog li koj yuav tsum tsis txhob them rau koj qhov kev mus los lossis kev pabcuam kom nkag mus rau qhov kev kho mob no. Tus nqi ntawm ib tus neeg saib xyuas lossis tus neeg txhawb nqa kuj raug them.
Txhawm rau nrhiav cov ntaub ntawv koj tuaj yeem nkag mus rau qhov kev kho mob no thov nug koj tus kws kho mob txog cov kev pab txhawb nqa tus neeg mob. Koj tuaj yeem pom peb CAR T-cell therapy webpage ntawm no Yog xav paub ntxiv txog CAR T-cell therapy.
CAR T-cell therapy muaj nyob qhov twg?
Hauv tebchaws Australia, CAR T-cell kho tam sim no muaj nyob rau ntawm cov chaw hauv qab no:
- Western Australia - Tsev Kho Mob Fiona Stanley.
- New South Wales - Royal Prince Alfred.
- New South Wales - Tsev Kho Mob Westmead.
- Victoria - Peter MacCallum chaw kho mob cancer.
- Victoria - Tsev Kho Mob Alfred.
- Queensland – Royal Brisbane thiab Women's Hospital.
- South Australia - nyob twj ywm.
Tseem muaj cov kev sim tshuaj uas tab tom saib CAR T-cell therapy rau lwm yam subtypes ntawm lymphoma. Yog tias koj txaus siab, nug koj tus kws kho mob txog txhua qhov kev sim tshuaj uas koj tuaj yeem tsim nyog tau txais.
Yog xav paub ntxiv txog CAR T-cell therapy, nias ntawm no. Qhov txuas no yuav coj koj mus rau Kim zaj dab neeg, uas nws tham txog nws qhov kev paub dhau los ntawm CAR T-cell therapy los kho nws Diffuse loj B-cell lymphoma (DLBCL). Txuas ntxiv rau cov lus qhia ntxiv ntawm CAR T-cell therapy kuj muab.
Koj tseem tuaj yeem tiv tauj peb ntawm Lymphoma Australia los ntawm nyem rau ntawm "hu rau peb" khawm nyob hauv qab ntawm nplooj ntawv no.
Qee cov lymphomas tuaj yeem tshwm sim los ntawm kev kis kab mob. Hauv cov xwm txheej tsis tshua muaj, cov qog ntshav qog tuaj yeem kho tau los ntawm kev kho tus kab mob.
Rau qee hom lymphoma, xws li thaj tsam marginal MALT lymphomas, lymphoma tsis loj hlob thiab nws thiaj li tuag ib zaug thaum cov kab mob raug tshem tawm. Qhov no feem ntau tshwm sim hauv plab MALT tshwm sim los ntawm H. pylori kab mob, lossis rau cov kab mob plab uas tsis yog plab uas ua rau muaj kab mob hauv lossis ib ncig ntawm lub qhov muag.
Kev phais yuav raug siv los tshem tawm cov lymphoma tag nrho. Qhov no yuav ua tau yog tias koj ib cheeb tsam ntawm lymphoma uas tuaj yeem tshem tau yooj yim. Nws kuj tseem yuav xav tau yog tias koj muaj splenic lymphoma tshem koj tus po tag nrho. Qhov kev phais no hu ua splenectomy.
Koj tus po yog ib qho tseem ceeb ntawm koj lub cev tiv thaiv kab mob thiab lymphatic. Nws yog qhov twg ntau ntawm koj cov lymphocytes nyob, thiab qhov twg koj cov B-hlwb ua cov tshuaj tiv thaiv los tiv thaiv kab mob.
Koj tus po kuj tseem pab lim koj cov ntshav, rhuav tshem cov hlwb qub los ua txoj hauv kev rau cov hlwb tshiab thiab khaws cov qe ntshav dawb thiab platelets, uas pab koj cov ntshav txhaws. Yog tias koj xav tau ib qho splenectomy, koj tus kws kho mob yuav tham nrog koj txog kev ceev faj koj yuav tsum tau noj tom qab koj qhov kev phais.
Kev sim tshuaj ntsuam xyuas yog ib txoj hauv kev tseem ceeb los nrhiav kev kho tshiab, lossis kev sib txuas ntawm kev kho mob los txhim kho cov txiaj ntsig rau cov neeg mob qog nqaij hlav lossis CLL. Lawv kuj tuaj yeem muab sijhawm rau koj los sim cov kev kho tshiab uas tsis tau pom zoo yav dhau los rau koj hom lymphoma.
Yog xav paub ntxiv txog kev sim tshuaj, thov mus saib peb lub vev xaib ntawm Nkag siab txog kev sim tshuaj ntsuam xyuas los ntawm nyem qhov no.
Kev kho mob yog koj xaiv. Thaum koj muaj tag nrho cov ntaub ntawv ntsig txog, thiab muaj lub sijhawm los nug cov lus nug, koj yuav ua li cas yog nyob ntawm koj.
Thaum cov neeg feem coob xaiv kho, qee leej yuav xaiv tsis kho. Tseem muaj ntau yam kev txhawb nqa uas koj tuaj yeem nkag mus tau los pab koj ua neej nyob ntev li ntev tau, thiab npaj koj cov xwm txheej.
Pab pawg saib xyuas neeg mob thiab cov neeg ua haujlwm sib raug zoo yog ib qho kev txhawb nqa zoo rau kev pab npaj cov khoom thaum koj tab tom npaj rau lub neej kawg, lossis tswj cov tsos mob.
Tham nrog koj tus kws kho mob txog kev xa mus rau cov pab pawg no.
Cov teebmeem ntawm Kev Kho Mob
Yog xav paub txog cov kev mob tshwm sim tshwj xeeb ntawm lymphoma / CLL kev kho mob thiab yuav tswj lawv li cas, thov nyem rau ntawm qhov txuas hauv qab no.
Kev sib deev thiab kev sib deev intimacy thaum kho lymphoma
Lub neej kev sib deev noj qab nyob zoo thiab kev sib deev intimacy yog ib qho tseem ceeb thiab tseem ceeb ntawm tib neeg. Yog li nws tseem ceeb heev uas yuav tau tham txog seb koj txoj kev kho mob yuav cuam tshuam li cas rau koj txoj kev sib deev.
Ntau tus ntawm peb tau raug coj los xav tias nws tsis zoo los tham txog kev sib deev. Tab sis nws yog ib qho tseem ceeb heev, thiab tham txog nws yog ib qho tseem ceeb tshwj xeeb tshaj yog thaum koj muaj lymphoma thiab tab tom pib kho.
Koj cov kws kho mob thiab cov kws saib xyuas neeg mob yog cov ntaub ntawv zoo, thiab yuav tsis xav txawv ntawm koj, lossis kho koj txawv yog tias koj nug lawv txog kev txhawj xeeb txog kev sib deev. Xav tias dawb nug txhua yam koj xav paub txog.
Koj tseem tuaj yeem hu rau peb ntawm Lymphoma Australia, tsuas yog nyem rau ntawm lub pob tiv tauj peb ntawm nws hauv qab ntawm nplooj ntawv no rau peb cov ntsiab lus.
Kuv puas tuaj yeem sib deev thaum kho mob qog nqaij hlav?
Yes! Tab sis muaj qee qhov kev ceev faj koj yuav tsum tau ua.
Muaj lymphoma, thiab nws cov kev kho mob tuaj yeem ua rau koj nkees heev thiab tsis muaj zog. Qee zaum, tej zaum koj yuav tsis xav tias muaj kev sib deev, thiab qhov ntawd zoo. Xav kom cuddle los sis cev nqaij daim tawv tsis muaj kev sib deev yog ok, thiab xav pw ua ke kuj ok. Thaum koj xaiv kev sib deev, nws yuav pab tau siv cov roj nplua nyeem raws li qee qhov kev kho mob tuaj yeem ua rau qhov chaw mos qhuav lossis erectile kawg.
Kev sib raug zoo tsis tas yuav ua rau kev sib deev, tseem tuaj yeem ua rau muaj kev xyiv fab thiab kev nplij siab. Tab sis yog tias koj nkees thiab tsis xav kov qhov ntawd kuj zoo ib yam. Ua siab ncaj nrog koj tus khub txog yam koj xav tau.
Kev sib txuas lus qhib thiab sib hwm nrog koj tus khub yog qhov tseem ceeb heev kom ntseeg tau tias koj ob leeg nyob nyab xeeb, thiab tiv thaiv koj txoj kev sib raug zoo.
Kev pheej hmoo kis mob thiab los ntshav
Koj tus lymphoma, lossis nws cov kev kho mob tuaj yeem ua rau nws muaj feem ntau koj yuav kis tau tus kab mob los yog los ntshav thiab bruise yooj yim. Qhov no yuav tsum tau xav txog thaum muaj kev sib deev. Vim li no, thiab muaj peev xwm ntawm kev nkees nkees yooj yim, tej zaum koj yuav tau tshawb xyuas cov qauv sib txawv thiab txoj haujlwm sib deev.
Siv lubrication tuaj yeem pab tiv thaiv microtears uas feem ntau tshwm sim thaum sib deev, thiab tuaj yeem pab tiv thaiv kab mob thiab los ntshav.
Yog tias koj tau kis tus kab mob sib deev dhau los, xws li herpes lossis qhov chaw mos pob khaus koj tuaj yeem muaj qhov muag. Koj tus kws kho mob yuav tuaj yeem sau cov tshuaj tiv thaiv kab mob rau koj thaum koj kho mob los tiv thaiv, lossis txo qhov mob ntawm qhov tshwm sim. Tham nrog koj tus kws kho mob lossis tus kws saib xyuas neeg mob yog tias koj tau kis tus kab mob sib deev yav dhau los.
Yog tias koj lossis koj tus khub puas tau muaj tus kab mob sib deev, lossis koj tsis paub meej, siv cov kev tiv thaiv kev tiv thaiv xws li lub pas nrig hniav lossis hnab looj tes nrog cov tshuaj tua kab mob los tiv thaiv kev kis kab mob.
Kuv tus khub puas yuav tsum muaj kev tiv thaiv?
Qee cov tshuaj tiv thaiv kab mob tuaj yeem pom nyob rau hauv tag nrho cov kua hauv lub cev nrog rau cov phev thiab qhov chaw mos. Vim li no, nws yog ib qho tseem ceeb uas yuav tsum tau siv cov kev tiv thaiv kev tiv thaiv xws li kev kho hniav dams lossis hnab looj tes thiab tshuaj tua kab mob. Kev sib deev tsis muaj kev tiv thaiv thaum thawj 7 hnub tom qab kev kho mob qog noj ntshav yuav ua rau muaj kev phom sij rau koj tus khub. Barrier tiv thaiv tiv thaiv koj tus khub.
Kuv puas tuaj yeem tau (los yog muaj lwm tus) cev xeeb tub thaum kho?
Kev poob cev xeeb tub thaum kho yuav cuam tshuam rau koj txoj kev kho mob, thiab tuaj yeem ua rau qeeb hauv kev kho koj xav tau los tswj koj cov qog ntshav qog ntshav.
Xav paub ntau ntxiv
Yog xav paub ntxiv, tham nrog koj pab neeg kho mob hauv koj lub tsev kho mob lossis chaw kho mob, lossis tham nrog koj tus kws kho mob hauv zos (GP). Qee lub tsev kho mob muaj cov kws saib xyuas neeg mob tshwj xeeb hauv kev sib deev hloov pauv thaum kho mob qog noj ntshav. Koj nug koj tus kws kho mob lossis tus kws saib xyuas neeg mob yog tias koj tuaj yeem raug xa mus rau ib tus neeg uas nkag siab thiab muaj kev paub pab cov neeg mob nrog cov kev hloov pauv no.
Koj tseem tuaj yeem nyem rau ntawm lub pob hauv qab no txhawm rau rub peb cov ntaub ntawv tseeb.
Cev xeeb tub thaum kho lymphoma
Txawm hais tias peb tau hais txog kev tsis xeeb tub, lossis lwm tus cev xeeb tub thaum kho, rau qee tus neeg, kev kuaj mob lymphoma tshwm sim tom qab koj cev xeeb tub. Hauv lwm qhov xwm txheej, kev xeeb tub yuav tshwm sim raws li kev xav tsis thoob thaum kho.
Nws yog ib qho tseem ceeb uas yuav tau tham nrog koj pab neeg kho mob txog cov kev xaiv uas koj muaj.
Kev Pab Txhawb Kev Kho Mob - Cov khoom siv ntshav, cov khoom loj hlob, steroids, kev tswj qhov mob, ntxiv & lwm txoj kev kho
Kev txhawb nqa kev kho mob tsis yog siv los kho koj cov qog ntshav qog ntshav, tab sis txhim kho koj lub neej zoo thaum kho mob qog ntshav qog ntshav lossis CLL. Feem ntau yuav pab txo qis cov kev mob tshwm sim, txhim kho cov tsos mob lossis txhawb koj lub cev tiv thaiv kab mob thiab cov ntshav suav rov qab.
Nyem rau ntawm nqe lus hauv qab no kom nyeem txog qee qhov kev kho mob txhawb nqa koj tuaj yeem muab.
Lymphoma thiab CLL nrog rau lawv cov kev kho mob tuaj yeem ua rau koj muaj cov qe ntshav tsis zoo. Koj lub cev feem ntau tuaj yeem hloov mus rau qib qis, tab sis qee zaum, koj tuaj yeem ntsib cov tsos mob. Muaj tsawg zaus cov tsos mob no tuaj yeem ua rau lub neej hem.
Kev hloov ntshav tuaj yeem pab ua kom koj cov ntshav suav ntau ntxiv los ntawm kev muab cov tshuaj rau koj cov hlwb uas koj xav tau. Cov no tuaj yeem suav nrog kev hloov ntshav liab, hloov ntshav platelet lossis hloov ntshav plasma. Plasma yog ib feem ntawm cov kua hauv koj cov ntshav thiab nqa cov tshuaj tiv thaiv kab mob thiab lwm yam kab mob uas pab ua kom koj cov ntshav txhaws zoo.
Australia muaj ib qho ntawm cov khoom siv ntshav nyab xeeb tshaj plaws hauv ntiaj teb. Cov ntshav los ntawm tus neeg pub dawb raug kuaj (hloov sib txuam) tiv thaiv koj tus kheej cov ntshav kom paub tseeb tias lawv sib haum. Tom qab ntawd cov ntshav pub dawb kuj tseem kuaj cov kab mob hauv cov ntshav xws li HIV, Kab mob siab B, Kab Mob siab C thiab tib neeg tus kab mob T-lymphotropic. Qhov no ua kom paub tseeb tias koj tsis muaj kev pheej hmoo kis tus kab mob no los ntawm koj qhov kev tso ntshav.
Kev hloov ntshav liab
Platelets
Platelets yog xim daj thiab tuaj yeem hloov pauv - muab rau koj rau hauv koj cov leeg kom nce koj cov qib platelet.
Intragam (IVIG)
Intragam yog ib qho kev txhaj tshuaj ntawm immunoglobulins - txwv tsis pub hu ua cov tshuaj tiv thaiv.
Koj cov B-cell lymphocytes ib txwm ua cov tshuaj tiv thaiv kab mob los tiv thaiv kab mob thiab kab mob. Tab sis thaum koj muaj lymphoma, koj cov B-hlwb yuav tsis tuaj yeem tsim cov tshuaj tiv thaiv txaus kom koj noj qab haus huv.
Yog tias koj pheej kis kab mob, lossis muaj teeb meem tshem tawm cov kab mob, koj tus kws kho mob yuav hais kom intragam rau koj.
Kev loj hlob yam tseem ceeb yog cov tshuaj siv los pab qee yam ntawm koj cov qe ntshav loj hlob sai dua. Nws yog feem ntau siv los txhawb koj cov pob txha pob txha los ua cov qe ntshav dawb ntau, los pab tiv thaiv koj ntawm kev kis kab mob.
Tej zaum koj yuav muaj lawv los ua ib feem ntawm koj cov txheej txheem chemo yog tias koj yuav xav tau kev txhawb nqa ntxiv los tsim cov hlwb tshiab. Koj tuaj yeem muaj lawv yog tias koj tab tom hloov cov qia cell kom koj lub cev ua kom ntau cov qia hlwb kom sau.
Qee qhov xwm txheej loj hlob tuaj yeem siv los txhawb koj cov pob txha pob txha los tsim cov qe ntshav liab ntau dua, txawm hais tias qhov no tsis zoo rau cov neeg mob qog nqaij hlav.
Hom kev loj hlob yam
Granulocyte-colony stimulating factor (G-CSF)
Granulocyte-colony stimulating factor (G-CSF) yog ib qho kev loj hlob zoo siv rau cov neeg mob qog nqaij hlav. G-CSF yog ib qho tshuaj hormones uas peb lub cev tsim tawm, tab sis kuj tuaj yeem tsim los ua tshuaj. Qee cov tshuaj G-CSF ua haujlwm luv luv thaum lwm tus ua haujlwm ntev. Ntau hom G-CSF suav nrog:
- Lenograstim (Granocyte®)
- Filgrastim (Neupogen®)
- Lipegfilgrastim (Lonquex®)
- Pegylated filgrastim (Neulasta®)
Kev mob tshwm sim ntawm G-CSF txhaj tshuaj
Vim tias G-CSF txhawb nqa koj cov pob txha pob txha los tsim cov qe ntshav dawb sai dua li niaj zaus, koj tuaj yeem tau txais qee yam kev mob tshwm sim. Qee qhov kev mob tshwm sim tuaj yeem suav nrog:
- npaws
- nkees nkees
- Cov plaub hau tsis
- Zawv plab
- Kauj taub hau
- Qhib
- mob taub hau
- Mob pob txha.
Nco ntsoov: Qee tus neeg mob tuaj yeem mob pob txha hnyav, tshwj xeeb tshaj yog nyob rau hauv koj lub nraub qaum. Qhov no tshwm sim vim tias G-CSF txhaj tshuaj ua rau muaj kev nce ntxiv hauv neutrophils (cov qe ntshav dawb), uas ua rau mob hauv koj cov pob txha. Cov pob txha pob txha feem ntau yog nyob rau hauv koj lub plab mog (hip / sab nraub qaum), tab sis muaj nyob rau hauv tag nrho koj cov pob txha.
Qhov mob no feem ntau qhia tias koj cov qe ntshav dawb rov qab los.
Cov menyuam yaus qee zaum mob ntau dua vim cov pob txha pob txha tseem hnyav heev thaum koj tseem hluas. Cov neeg laus muaj cov pob txha pob txha tsawg, yog li muaj chaw ntau dua rau cov qe dawb kom loj hlob yam tsis muaj qhov o. Qhov no feem ntau ua rau mob tsawg dua - tab sis tsis tas li. Tej yam uas tuaj yeem pab daws qhov tsis xis nyob:
- Paracetamol
- Kub pob
- Loratadine: ib qho ntawm cov tshuaj tiv thaiv antihistamine, uas txo cov inflammatory teb
- Hu rau pab neeg kho mob kom tau txais kev ua kom muaj zog ntxiv yog tias qhov saum toj no tsis pab.
Tsis tshua muaj tshwm sim
Muaj tsawg zaus koj tus po tuaj yeem ua o (loj), ntawm koj ob lub raum yuav puas.
Yog tias koj muaj cov tsos mob hauv qab no thaum muaj G-CSF, hu rau koj tus kws kho mob tam sim ntawd rau kev tawm tswv yim.
- Ib qho kev xav puv lossis tsis xis nyob ntawm sab laug ntawm lub plab, nyob hauv qab tav
- Mob ntawm sab laug ntawm lub plab
- Mob ntawm qhov kawg ntawm lub xub pwg sab laug
- Teeb meem dhau zis (wee), los yog dhau tsawg dua li qub
- Hloov cov xim ntawm koj cov zis mus rau xim liab lossis xim av tsaus
- o ntawm koj ob txhais ceg lossis ko taw
- Teeb meem ua pa
Erythropoietin
Erythropoietin (EPO) yog ib qho kev loj hlob uas txhawb kev loj hlob ntawm cov qe ntshav liab. Nws tsis yog siv ntau vim tias cov qe ntshav liab qis feem ntau yog tswj hwm nrog cov ntshav.
Yog tias koj tsis tuaj yeem hloov ntshav rau kev kho mob, sab ntsuj plig lossis lwm yam laj thawj, koj tuaj yeem tau txais erythropoietin.
Steroids yog ib hom tshuaj hormones uas peb lub cev ib txwm ua. Txawm li cas los xij lawv kuj tuaj yeem ua hauv chav kuaj ua tshuaj. Feem ntau hom steroids siv los kho cov neeg mob lymphoma yog hom hu ua corticosteroids. Qhov no suav nrog cov tshuaj prednisolone, methylprednisolone thiab dexamenthasone. Cov no txawv ntawm hom steroids uas tib neeg siv los tsim cov leeg nqaij.
Vim li cas cov tshuaj steroids siv hauv lymphoma?
Cov tshuaj steroid yog siv nrog koj cov tshuaj khomob, thiab yuav tsum tau siv sij hawm luv luv xwb raws li koj tus kws kho mob haematologist lossis oncologist tau sau tseg. Steroids yog siv rau ntau yam hauv kev kho mob qog nqaij hlav.
Cov no tuaj yeem suav nrog:
- Kho cov lymphoma nws tus kheej.
- Pab lwm yam kev kho mob xws li kws khomob ua haujlwm zoo dua.
- Txo kev ua xua rau lwm yam tshuaj.
- Txhim kho cov kev mob tshwm sim xws li qaug zog, xeev siab, thiab tsis qab los noj mov.
- Txo qhov o uas yuav ua rau koj muaj teeb meem. Piv txwv li yog tias koj muaj tus txha caj qaum compression.
Cov teebmeem ntawm steroids
Cov tshuaj steroid tuaj yeem ua rau muaj ntau yam tsis xav tau. Feem ntau cov no yog luv luv thiab zoo dua ob peb hnub tom qab koj tso tseg lawv.
Cov kev mob tshwm sim feem ntau muaj xws li:
- Mob plab los yog hloov rau koj qhov chaw tso quav
- Ua kom qab los noj mov thiab hnyav nce
- Ntshav siab dua li qub
- Osteoporosis (cov pob txha tsis muaj zog)
- Kua dej kua
- Ua rau muaj kab mob ntau dua
- Kev xav voj voog
- pw tsaug zog tsis yooj yim (insomnia)
- Cov leeg tsis muaj zog
- Cov ntshav qab zib ntau dua (los yog ntshav qab zib hom 2). Qhov no tuaj yeem ua rau koj
- xav nqhis dej
- yuav tsum tso zis (wee) ntau zaus
- muaj ntshav qabzib ntau
- muaj suab thaj ntau hauv cov zis
Qee qhov xwm txheej, yog tias koj cov ntshav qab zib ntau dhau lawm, koj yuav tsum tau kho nrog insulin ib ntus, kom txog thaum koj tawm ntawm cov tshuaj steroids.
Lub siab thiab tus cwj pwm hloov
Steroids tuaj yeem cuam tshuam rau lub siab thiab tus cwj pwm. Lawv tuaj yeem ua rau:
- kev ntxhov siab lossis kev ntxhov siab
- Mood swings (moods that go up and down)
- tsis muaj kev xav lossis kev nyuaj siab
- xav ua phem rau koj tus kheej lossis lwm tus.
Kev hloov pauv ntawm lub siab thiab tus cwj pwm tuaj yeem ua rau ntshai heev rau tus neeg noj cov tshuaj steroids, thiab lawv cov neeg hlub.
Yog tias koj pom tias muaj kev hloov pauv hauv koj, lossis koj cov neeg koj hlub lub siab thiab tus cwj pwm thaum noj steroids, nrog koj tus kws kho mob tham tam sim ntawd. Qee zaum kev hloov tshuaj, lossis hloov mus rau lwm qhov steroid tuaj yeem ua rau txhua qhov sib txawv los pab koj zoo dua. Qhia rau tus kws kho mob lossis tus kws saib xyuas neeg mob yog tias muaj kev hloov pauv hauv koj lub siab lossis tus cwj pwm. Tej zaum yuav muaj qee qhov kev hloov pauv rau kev kho mob yog tias cov kev mob tshwm sim ua rau muaj teeb meem.
Cov lus qhia rau kev noj steroids
Txawm hais tias peb tsis tuaj yeem txwv tsis tau cov kev mob tshwm sim los ntawm cov tshuaj steroids, muaj qee yam uas koj tuaj yeem ua kom txo qis cov kev mob tshwm sim phem rau koj. Hauv qab no yog qee cov lus qhia uas koj xav sim.
- Coj lawv thaum sawv ntxov. Qhov no yuav pab kom muaj zog thaum nruab hnub, thiab cia siab tias yuav hnav thaum hmo ntuj kom koj tuaj yeem pw tsaug zog zoo dua.
- Coj lawv nrog mis nyuj los yog zaub mov los tiv thaiv koj lub plab thiab txo qis thiab xeev siab
- Tsis txhob dheev tsis txhob noj cov tshuaj steroids yam tsis muaj koj tus kws kho mob cov lus qhia - qhov no tuaj yeem ua rau tshem tawm thiab ua rau tsis kaj siab heev. Qee qhov koob tshuaj ntau dua yuav tsum tau nres maj mam nrog cov tshuaj me me txhua hnub.
Thaum twg yuav tsum hu rau koj tus kws kho mob
Qee zaum koj yuav tau hu rau koj tus kws kho mob ua ntej koj teem caij mus ntsib tom ntej. Yog tias ib qho ntawm cov hauv qab no tshwm sim thaum noj steroids, thov qhia rau koj tus kws kho mob sai li sai tau.
- Cov cim qhia ntawm cov kua dej khaws cia xws li ua tsis taus pa luv, ua pa nyuaj, o ntawm ko taw lossis ob txhais ceg, lossis hnyav hnyav.
- hloov rau koj lub siab xav lossis tus cwj pwm
- Cov tsos mob ntawm tus kab mob xws li kub siab, hnoos, o los yog tej yam mob.
- yog tias koj muaj lwm yam kev mob tshwm sim uas cuam tshuam rau koj.
Qee cov tshuaj cuam tshuam nrog cov tshuaj steroids uas tuaj yeem ua rau ib lossis ob qho tib si tsis ua haujlwm raws li lawv xav tau. Tham nrog koj tus kws kho mob lossis tus kws muag tshuaj txog txhua yam tshuaj thiab tshuaj ntxiv uas koj noj yog li lawv tuaj yeem paub tseeb tias tsis muaj ib qho kev cuam tshuam txaus ntshai nrog koj cov tshuaj steroids.
Yog tias koj raug tshuaj steroids, tham nrog koj tus kws kho mob lossis kws muag tshuaj ua ntej:
- Muaj cov tshuaj tiv thaiv muaj sia (xws li tshuaj tiv thaiv kab mob qhua pias, qhua pias, mumps thiab rubella, polio, shingles, tuberculosis)
- Noj tshuaj ntsuab los yog tshaj cov tshuaj tiv thaiv
- Cev xeeb tub los yog pub niam mis
- Yog tias koj muaj mob cuam tshuam rau koj lub cev tiv thaiv kab mob (tshwj tsis yog koj li lymphoma).
Kev pheej hmoo kis mob
Thaum noj cov tshuaj steroids koj yuav muaj kev pheej hmoo kis mob ntxiv. Zam cov neeg uas muaj cov tsos mob kis los yog mob.
Qhov no suav nrog cov neeg uas muaj kab mob khaub thuas, kab mob shingles, mob khaub thuas thiab mob khaub thuas (lossis COVID) cov tsos mob, pneumocystis jiroveci pneumonia (PJP). Txawm hais tias koj tau muaj cov kab mob no yav dhau los, vim tias koj cov qog ntshav qog ntshav, thiab siv cov tshuaj steroids, koj tseem yuav muaj kev pheej hmoo ntxiv.
Xyaum ua tib zoo ntxuav tes thiab nyob sib nrug deb thaum nyob hauv pej xeem.
Koj cov lymphoma lossis kev kho mob yuav ua rau mob thiab mob thoob plaws hauv koj lub cev. Rau qee tus neeg, qhov mob yuav hnyav heev thiab xav tau kev pab kho mob los txhim kho nws. Muaj ntau ntau hom kev mob nyem muaj los pab koj tswj koj qhov mob, thiab thaum tswj kom tsim nyog yuav tsis coj rau kev quav tshuaj rau qhov mob nyem.
Kev tswj cov tsos mob nrog Palliative care - Lawv tsis yog rau kev saib xyuas lub neej kawg nkaus xwb
Yog tias koj qhov mob nyuaj rau tswj tau, koj tuaj yeem tau txais txiaj ntsig los ntawm kev pom pab pawg neeg saib xyuas palliative. Ntau tus neeg txhawj xeeb txog kev pom pab neeg saib xyuas palliative vim lawv tsuas paub tias lawv yog ib feem ntawm kev saib xyuas thaum kawg ntawm lub neej. Txawm li cas los xij, kev saib xyuas thaum kawg ntawm lub neej tsuas yog ib feem ntawm qhov pab pawg saib xyuas palliative ua.
Palliative care teams yog cov kws paub txog kev tswj xyuas cov tsos mob xws li mob, xeev siab thiab ntuav thiab tsis qab los noj mov. Lawv kuj muaj peev xwm sau tau ntau yam tshuaj kho mob ntau dua li koj tus kws kho mob hematologist lossis tus kws kho mob oncologist muaj peev xwm. Yog li yog tias qhov mob cuam tshuam rau koj lub neej zoo, thiab tsis muaj dab tsi zoo li ua haujlwm, nws yuav tsim nyog nug koj tus kws kho mob kom xa mus rau palliative care rau kev tswj cov tsos mob.
Complementary thiab lwm txoj kev kho mob tau dhau los ua ntau dua. Lawv tuaj yeem suav nrog:
Complementary Therapies | Lwm Yam Kev Kho Mob |
zaws Acupuncture Reflexology Meditation thiab nco qab Thai Chi thiab Qi Gong Zaj Dab Neeg Kev Kho Mob Nkauj Kho Kho Aromatherapy Kev Sib Tham thiab Psychology | Naturopathy Vitamin infusions Homeopathy Suav tshuaj ntsuab Detoxes Ayurveda Bio-electromagnetics Kev noj zaub mov nruj heev (xws li ketogenic, tsis muaj suab thaj, vegan) |
Kev kho mob ntxiv
Cov kev kho mob ntxiv yog txhawm rau ua haujlwm nrog koj li kev kho mob ib txwm muaj. Nws tsis yog txhais tau tias yuav coj qhov chaw ntawm koj cov kev kho mob pom zoo los ntawm koj tus kws kho mob tshwj xeeb. Lawv tsis yog siv los kho koj cov qog ntshav qog ntshav lossis CLL, tab sis pab txhim kho koj lub neej zoo los ntawm kev txo qhov hnyav, lossis lub sijhawm muaj kev phiv. Lawv tuaj yeem pab txo qis kev ntxhov siab thiab kev ntxhov siab, lossis pab koj tiv nrog kev ntxhov siab ntxiv hauv koj lub neej thaum nyob nrog lymphoma / CLL thiab nws cov kev kho mob.
Ua ntej koj pib ib qho kev kho ntxiv, tham nrog koj tus kws kho mob tshwj xeeb lossis tus kws saib xyuas neeg mob. Qee qhov kev kho mob ntxiv yuav tsis muaj kev nyab xeeb thaum kho, lossis yuav tsum tau tos kom txog thaum koj cov qe ntshav nyob rau theem ib txwm muaj. Ib qho piv txwv ntawm qhov no yog tias koj tsis tshua muaj platelets, zaws lossis acupuncture yuav ua rau koj muaj feem yuav los ntshav thiab bruising.
Lwm txoj kev kho mob
Lwm txoj kev kho mob yog txawv rau cov kev kho mob ntxiv vim tias lub hom phiaj ntawm lwm txoj kev kho mob yog los hloov cov kev kho mob ib txwm muaj. Cov neeg uas xaiv tsis muaj kev kho mob nrog cov kws khomob, xov tooj cua lossis lwm yam kev kho mob ib txwm muaj yuav xaiv qee hom kev kho mob lwm yam.
Muaj ntau txoj kev kho mob lwm yam tsis tau raug tshawb fawb. Nws yog ib qho tseem ceeb kom nug koj tus kws kho mob yog tias koj tab tom xav txog lwm txoj kev kho mob. Lawv yuav tuaj yeem muab cov ntaub ntawv qhia rau koj txog cov txiaj ntsig ntawm kev kho mob ib txwm muaj thiab qhov no piv rau lwm txoj kev kho mob li cas. Yog tias koj tus kws kho mob tsis ntseeg siab los tham nrog koj txog lwm txoj kev kho mob, thov kom lawv xa koj mus rau ib tus neeg uas muaj kev paub ntau ntxiv nrog lwm txoj kev xaiv.
Cov lus nug koj tuaj yeem nug koj tus kws kho mob
1) Koj muaj kev paub dab tsi nrog kev pab dawb thiab lossis lwm txoj kev kho mob?
2) Cov kev tshawb fawb tshiab yog dab tsi (txawm qhov kev kho mob twg koj txaus siab rau)?
3) Kuv tau saib rau hauv (kev kho mob), koj tuaj yeem qhia kuv txog nws li cas?
4) Puas muaj lwm tus koj xav kom kuv tham txog cov kev kho mob no?
5) Puas muaj kev cuam tshuam nrog kuv txoj kev kho mob uas kuv yuav tsum paub txog?
Saib xyuas koj txoj kev kho mob
Koj tsis tas yuav txais cov kev kho mob uas muaj rau koj, thiab koj muaj cai nug txog kev xaiv sib txawv.
Feem ntau koj tus kws kho mob yuav muab cov kev kho mob rau koj uas tau pom zoo rau koj hom lymphoma. Tab sis qee zaus kuj muaj lwm yam tshuaj uas yuav ua tau zoo rau koj uas tej zaum yuav tsis tau teev nrog Therapeutic Goods Administration (TGA) lossis Pharmaceutical Benefits Scheme (PBS).
Saib cov yees duab Them nqi: Lwm txoj kev nkag mus rau cov tshuaj tsis tau teev nyob rau hauv PBS rau cov lus qhia ntxiv.
Ua tiav koj cov kev kho mob rau lymphoma tuaj yeem ua rau muaj kev xav sib xyaw. Tej zaum koj yuav hnov zoo siab, zoo siab thiab xav ua kev zoo siab, lossis koj yuav txhawj xeeb thiab txhawj xeeb txog yam yuav tshwm sim tom ntej. Nws kuj yog ib txwm zoo rau kev txhawj xeeb txog lymphoma rov qab los.
Lub neej yuav siv sij hawm ib pliag kom rov zoo li qub. Koj tuaj yeem muaj qee qhov kev phiv los ntawm koj txoj kev kho mob, lossis cov tshiab tuaj yeem pib tom qab kev kho mob tas. Tab sis koj yuav tsis nyob ib leeg. Lymphoma Australia nyob ntawm no rau koj txawm tias tom qab kho tas lawm. Koj tuaj yeem tiv tauj peb los ntawm nias lub pob "Hu rau peb" nyob hauv qab ntawm nplooj ntawv no.
Koj tseem yuav mus ntsib koj tus kws kho mob tshwj xeeb tsis tu ncua. Lawv tseem yuav xav pom koj thiab kuaj ntshav thiab kuaj xyuas kom paub tseeb tias koj nyob zoo. Cov kev ntsuam xyuas tsis tu ncua no tseem ua kom paub tseeb tias cov cim qhia ntawm koj cov qog ntshav qab zib tuaj yeem tuaj tos ntxov.
Rov qab mus rau qhov qub, lossis nrhiav koj qhov qub qub
Ntau tus neeg pom tias tom qab kuaj mob qog noj ntshav, lossis kev kho mob, lawv lub hom phiaj thiab qhov tseem ceeb hauv lub neej hloov pauv. Paub seb koj qhov 'ib txwm tshiab' yog dab tsi tuaj yeem siv sijhawm thiab ntxhov siab. Kev cia siab ntawm koj tsev neeg thiab cov phooj ywg yuav txawv rau koj li. Koj tuaj yeem xav tias nyob ib leeg, qaug zog lossis muaj ntau tus cwj pwm txawv uas tuaj yeem hloov pauv txhua hnub.
Lub hom phiaj tseem ceeb tom qab kev kho mob rau koj cov qog ntshav qog ntshav lossis CLL kev kho mob yog kom rov qab mus rau lub neej thiab:
- ua kom nquag plias li sai tau hauv koj txoj haujlwm, tsev neeg, thiab lwm yam haujlwm hauv lub neej
- txo cov kev mob tshwm sim thiab cov tsos mob ntawm tus mob qog noj ntshav thiab nws txoj kev kho mob
- txheeb xyuas thiab tswj cov kev mob tshwm sim lig
- pab kom koj muaj kev ywj pheej raws li qhov ua tau
- txhim kho koj lub neej zoo thiab tswj kev puas siab puas ntsws zoo.
Ntau hom kev kho mob qog noj ntshav kuj yuav txaus siab rau koj. Kev kho mob qog noj ntshav tuaj yeem suav nrog ntau yam kev pabcuam xws li:
- kev kho lub cev, kev kho mob
- kev npaj noj haus thiab kev tawm dag zog
- kev xav, kev paub txog kev ua haujlwm thiab nyiaj txiag.
Tu siab, qee qhov kev kho mob tsis ua haujlwm zoo li peb cia siab. Hauv lwm qhov xwm txheej, koj tuaj yeem txiav txim siab txog kev kawm kom tsis txhob muaj kev kho mob ntxiv thiab pom koj lub hnub yam tsis muaj qhov cuam tshuam ntawm kev teem sijhawm thiab kev kho mob. Txawm li cas los xij, nws yog ib qho tseem ceeb kom nkag siab tias yuav xav li cas thiab npaj txhij thaum koj mus txog qhov kawg ntawm koj lub neej.
Muaj kev txhawb nqa rau koj thiab koj cov neeg koj hlub. Tham nrog koj pab neeg kho mob txog kev txhawb nqa dab tsi rau koj hauv koj cheeb tsam.
Qee yam uas koj yuav xav xav nug txog muaj xws li:
- Kuv yuav hu rau leej twg yog tias kuv pib mob, lossis kuv cov tsos mob hnyav dua thiab kuv xav tau kev pab?
- Kuv yuav hu rau leej twg yog kuv nyuaj siab tu kuv tus kheej hauv tsev?
- Puas yog kuv tus kws kho mob hauv zos (GP) puas muab kev pabcuam xws li kev mus ntsib tom tsev lossis xov tooj?
- Kuv yuav ua li cas thiaj paub tseeb tias kuv cov kev xaiv raug hwm thaum kawg ntawm kuv lub neej?
- Qhov kawg ntawm kev txhawb nqa lub neej muaj rau kuv?
Koj tuaj yeem nrhiav cov ntaub ntawv ntau ntxiv txog kev npaj rau kev saib xyuas lub neej kawg los ntawm kev nyem qhov txuas hauv qab no.
Npaj koj qhov kawg ntawm kev saib xyuas lub neej
Lwm yam kev pab rau koj
Lymphoma Australia's Support for you webpage - nrog ntau qhov txuas
CANTEEN - rau cov menyuam yaus thiab cov hluas uas mob qog noj ntshav, lossis cov niam txiv muaj mob qog noj ntshav.
Sau kuv cov neeg coob - txhawm rau pab koj thiab cov neeg koj hlub sib koom tes ntxiv kev pab koj xav tau.
Lwm cov apps los tswj kev txhawb nqa kev xav tau nrog tsev neeg thiab phooj ywg:
eviQ lymphoma kho raws tu qauv - nrog rau cov tshuaj thiab cov kev mob tshwm sim.
Cov ntaub ntawv mob qog noj ntshav hauv lwm hom lus - los ntawm Tsoom Fwv Victorian